Framework for Assessing Family Engagement

The Family Voices project, Framework for Assessing Family Engagement, funded by a grant from the Lucile Packard Foundation for Children’s Health, Palo Alto, California, investigated strategies of state and federal agencies, as well as public and private organizations can implement for ensuring, enhancing, and supporting family engagement in the systems of care on which all children, including children and youth with special healthcare needs (CYSHCN), depend. Drawing on a literature review and key information interviews with families and professionals, the goal of the project was to define a framework and key criteria of effective family engagement in systems-level activities as a first step in developing a Family Engagement in Healthcare Systems Assessment Tool and Toolkit to help groups assess and improve the engagement of families in healthcare programs and policy.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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