Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Enlarge Map

Click on the map or select a state or territory:

Family Voices News

Washington Update January 14, 2021

The major issues covered in this Update are: Enactment of the COVID-relief and FY 2021 appropriations bill Medicaid news, including: Extension of the Public Health Emergency (PHE) and consequent extension of the enhanced federal match, maintenance-of-effort...

Family Voices wins HRSA CSHCN Grand Challenge!

Family Voices National is honored to be one of the winners of HRSA's Maternal and Child Health Bureau (MCHB) Care Coordination for Children with Special Health Care Needs (CSHCN) Challenge. Led by Cara Coleman, Family Voices National was part of a multidisciplinary...

Washington Update December 15 2020

The big issues in DC right now are: FDA authorization for emergency use of coronavirus vaccines – On Thursday, an FDA advisory committee recommended that the FDA grant “emergency use authorization” (EUA) of the vaccine developed by Pfizer for individuals age 16 and...

Washington Update, October 30, 2020

Greetings from Washington, DC In this Update: The administration has issued an interim final rule weakening the “Maintenance of Effort” requirement that states must meet to receive an enhanced Medicaid match during the COVID Public Health Emergency. States may now...

New! Family Voices Telehealth Checklist & Worksheet

The year 2020 has changed many things, and how we operate in the world around us. One of the biggest changes, has been in the area of healthcare, and the shift to more services being delivered through telehealth or telemedicine. Families across the country have had to...

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of