Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

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About Family Voices

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Our Team

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Enlarge Map

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Family Voices News

1115 Waiver Amendments – May 2025 Update: Open Comment Periods

May 27, 2025

Proposed Medicaid 1115 Waiver Amendments for Kentucky, Georgia, South Dakota, Iowa, and Utah. Kentucky Kentucky's proposed 1115 waiver amendments includes automatic referral of Medicaid expansion adults, aged 19-60, who have been enrolled in Medicaid for over 12...

Budget Reconciliation and Medicaid Impacts – May 2025

May 27, 2025

On May 22, the House of Representatives passed its “One Big Beautiful Bill Act” by a vote of 215-214. The House budget includes major proposed changes to Medicaid that are expected to leave 8.6 million uninsured. It will head to the Senate next. The Senate is expected...

Joint Statement from Autism and Disability Advocacy Organizations

May 21, 2025

Family Voices and several Autism and disability advocacy organizations join together to release a joint statement affirming our united stance in science-based decision-making and increased investment in the research, programs, and services the Autism community needs...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.