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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Greetings from Washington: Washington Update, June 27, 2018 Summary
The big issue in DC is still the separation of immigrant children from their families at the southwest US border, or more precisely, how to reunite them. In order to gain sufficient support for ways to address this and other immigration issues, the House has postponed...
Medicaid Plays a Critical Role in Caring for Infants Exposed to Opiods or Other Drugs in Utero
A Georgetown Center on Children and Families blog post explains the recent Informational Bulletin to states about Medicaid coverage of services for neonatal abstinence syndrome.
Of Possible Interest
Sky-High Deductibles Broke the U.S. Health Insurance System (Bloomberg, 6/26/18) How will marketplace premiums change in 2019? It depends where you live. (Kaiser Family Foundation, 6/21/18)
Your Input Sought
Traveling by Air with Service Animals [corrected from May 31 Update.] Comments due July 9 On May 23, the Department of Transportation (DOT) published an Advanced Notice of Proposed Rulemaking (ANPRM) regarding regulations of service animals under the Air Carrier...
Other News, Information, and Resources
FDA Approves Epilepsy Drug Derived from Marijuana On Monday, June 25, the Food and Drug Administration (FDA) announced the approval of a purified form of the drug cannabidiol (CBD). The new product, called Epidiolex, was approved to treat seizures in patients two...