Family Voices News

Shared Decision Making Worksheet for COVID-19 Prevention

Shared Decision Making (SDM) is highlighted as being critical to navigating COVID-19 together with families and providers by the American Academy of Pediatrics (AAP), interim guidance, Caring for Children and Youth With Special Health Care Needs During the COVID-19...

Washington Update, October 9, 2020

The prospects for legislation to address the pandemic’s financial impact are very unclear at the moment, but it is still within the realm of possibility that an agreement will be reached before the election. Hearings begin next week on the nomination of Judge Amy...

Washington Update, September 22, 2020

Both houses of Congress are back in session after their August break, but have made no progress on another pandemic-relief bill. As of this writing, it seems unlikely, but not impossible, that a bill will be passed before the election. In other news… Medicaid...

Washington Update, August 7, 2020

The capital city is focused right now on reaching an agreement on the next bill to address the health and economic consequences of the coronavirus pandemic. Should legislation get enacted, it is expected to be the last COVID bill before the election. Congressional...

Washington Update, July 22, 2020

The name of the game on Capitol Hill is still the next COVID bill, which is being negotiated now that Congress is back from recess (having returned on Monday, July 20). It is expected that legislation will be enacted before Congress adjourns in two or three weeks for...

Washington Update, July 2, 2020

From July 3 until July 20, both the House and Senate will be in recess, which presents a good time to educate your Members of Congress about the pandemic-related challenges facing families of children and youth with special health care needs, the health care providers...

Washington Update, June 10, 2020

For the first time in recent memory, the news in DC has been dominated by something other than the coronavirus pandemic – the issue of systemic racism and law-enforcement treatment of Black Americans, which many experts view as a public health issue . See the 2019...

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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

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Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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