Family Voices News
Shared Decision Making Worksheet for COVID-19 Prevention
Shared Decision Making (SDM) is highlighted as being critical to navigating COVID-19 together with families and providers by the American Academy of Pediatrics (AAP), interim guidance, Caring for Children and Youth With Special Health Care Needs During the COVID-19...
Washington Update, October 9, 2020
The prospects for legislation to address the pandemic’s financial impact are very unclear at the moment, but it is still within the realm of possibility that an agreement will be reached before the election. Hearings begin next week on the nomination of Judge Amy...
Washington Update, September 22, 2020
Both houses of Congress are back in session after their August break, but have made no progress on another pandemic-relief bill. As of this writing, it seems unlikely, but not impossible, that a bill will be passed before the election. In other news… Medicaid...
ACTION NEEDED ON PANDEMIC RELIEF!
A national call-in day has been organized by the Coalition on Human Needs and other organizations. Please read below and take action TODAY. COVID-19 Senate Call-In Day – TODAY (Wed.) At the moment, Congress seems unlikely to provide additional relief to those...
Announcing: Family Voices United to End Racism against CYSHCN and Families
Following its Black Lives Matter Statement of Solidarity, Family Voices, a network of 59 family-led Family-to-Family Health Information Centers across the United States and its territories, has launched an 18-month project to address and dismantle racism in the health...
Washington Update, August 7, 2020
The capital city is focused right now on reaching an agreement on the next bill to address the health and economic consequences of the coronavirus pandemic. Should legislation get enacted, it is expected to be the last COVID bill before the election. Congressional...
Washington Update, July 22, 2020
The name of the game on Capitol Hill is still the next COVID bill, which is being negotiated now that Congress is back from recess (having returned on Monday, July 20). It is expected that legislation will be enacted before Congress adjourns in two or three weeks for...
Washington Update, July 2, 2020
From July 3 until July 20, both the House and Senate will be in recess, which presents a good time to educate your Members of Congress about the pandemic-related challenges facing families of children and youth with special health care needs, the health care providers...
Resource eBlast June 2020: Talking with Young Kids about Racism, Police Brutality, and Protests
Raising a brave generation of children requires open, honest, and age appropriate exploration of race, racism, justice, equality, and anti-racism. It is an emotional time right now, marked by challenge, pain, and grief. This eBlast shares some ideas, tools, and...
Washington Update, June 10, 2020
For the first time in recent memory, the news in DC has been dominated by something other than the coronavirus pandemic – the issue of systemic racism and law-enforcement treatment of Black Americans, which many experts view as a public health issue . See the 2019...