For All CYSHCN Stakeholders

  • Annual face-to-face convening for all stakeholders to share and learn about family engagement and family/professional partnerships
    • Year 1 – in conjunction with the 2020 AMCHP Conference – March 2020
    • Year 2 – National Family Voices Leadership Conference (Spring 2021)
    • Year 3 – TBD based on stakeholder input (2022)
  • Several virtual learning opportunities each year
  • Ongoing sharing of best practices and resources on family engagement via website and email lists
  • Inform of emerging state and federal trends, legislation, regulations and other relevant policy impacting CYSHCN
    and their families.
  • Ongoing communications:
    • Weekly Washington DC Update e-newsletter
    • E-newsletter sharing family/professional partnership and family engagement resources and examples from the field

See below for other audience-specific offerings

For Family Organizations

  • Serving on Groups Train-the-Trainer Facebook Live Workshops
    for developing family leadership, especially diverse family leadership, to participate on decision making groups at systems level, and follow-up mentoring/support

See below for F2F/FVAO specific offerings

For F2Fs/FVAOs

  • Online organizational capacity self-study workshops
  • Data support for F2F program with data definitions, collection, reporting, and national program analysis
  • Monthly drop-in calls on developing and supporting family engagement
  • Opportunities and mentorship for diverse family/youth to serve as partners on national and regional initiatives
  • Ongoing connection through national F2F/FVAO listservs, quarterly regional calls
  • Individualized TA

See below for offerings especially created for F2Fs/FVAOs and state agencies/Title V

For Title V and Other State Agency Leaders

  • Leading by Convening Webinar Series on effectively engaging diverse stakeholders at systems and policy level
  • Leading by Convening follow-up support

See below for offerings especially created for state agencies/Title V and F2Fs/FVAOs

For F2Fs/FVAOs and Title V/State Agencies

  • Trainings on validated tools to assess/measure Family Engagement:
    • Family-Centered Care Assessment Tool (FCCA) to assess family-professional partnerships at the individual level

    • Family Engagement in Systems Toolkit (FESAT) to assess family-professional partnerships at the program and/or systems level

  • State Collaborative Action Team Process: A facilitated cohort on family engagement for 4-5 state teams of family organizations and state partners that have attended Serving on Groups (family organizations) and Leading by Convening workshops

  • F2F peer-to-peer matching to connect in-person or virtually with another F2F. Option for F2F to invite their state partners to participate

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of