Meaningful Family Partnership for Quality Improvement

Additional Resources

In this section, you’ll find additional resources to help build and strengthen your partnerships with families.

Family Engagement in Systems Toolkit

Three colorful infographics related to the FESAT shown side by side.

Find infographics and learn more about the FESAT at familyvoices.org/fesat.

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FESAT - Family Engagement in Systems Toolkit

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A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families

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Family Engagement Resources

Lucile Packard Foundation for Children’s Health

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CYSHCNet Standards of Compensation Series

CYSHCNet/Family Voices

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Family Engagement Guide: The Role of Family Health Partners in Quality Improvement Within a Pediatric Medical Home

National Institute for Children’s Health Quality (NICHQ)

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Institute for Patient and Family Centered Care

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Family Leadership in Systems

Center for Innovation in Social Work & Health

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Family Partnership at the Clinical Level

Center for Innovation in Social Work & Health

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Family Engagement in Systems Infographic

The Family Run Executive Director Leadership Association (FREDLA)

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Supporting Family Participation in Systems of Care

Substance Abuse and Mental Health Services Administration (SAMHSA)

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Planning and Compensation Resources

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Leadership Models

Association of Maternal & Child Health Programs (AMCHP)

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Fabric Not Fringe

Association of University Centers on Disabilities (AUCD)

Boston University School of Social Work Center for Innovation in Social Work & Health logo.

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number #UJ6MC32737: Health Care Delivery System Innovations for Children with Medical Complexity ($2,700,000 annually). This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsement be inferred, by HRSA, HHS, or the U.S. government. Anna Maria Padlan, HRSA/MCHB Project Officer

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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