The National Health Care Transition Resource Center for Youth and Young Adults with Intellectual and Developmental Disabilities is in its second year of work to empower youth to lead their own transition to adult health care. One of the key products from the first year of the project was a data profile, completed by our partners at Got Transition, of what we know about youth with intellectual and developmental disabilities and their transition to adult health care. Learn more at familyvoices.org/healthcaretransition.

For more information for the health care transition needs of youth with intellectual and developmental disabilities, download the full report called “Landscape Analysis on Health Care Transition for Youth and Young Adults with Intellectual and Developmental Disabilities” developed by Got Transition.

This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100% funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.

Download the infographic here (pdf)

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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