by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
FDA Approves Epilepsy Drug Derived from Marijuana On Monday, June 25, the Food and Drug Administration (FDA) announced the approval of a purified form of the drug cannabidiol (CBD). The new product, called Epidiolex, was approved to treat seizures in patients two...
by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
As of June 20, the administration had not yet provided any information to about future funding to the groups that have been serving as ACA “navigators.” See Key ObamaCare groups in limbo as they await funding (The Hill, 6/20/28). Navigators assist consumers in...
by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
On June 20, the Centers for Medicare & Medicaid Services (CMS) released an Informational Bulletin that describes the requirements of section 12005 of the 21st Century Cures Act (the Cures Act) — “Providing EPSDT Services to Children in IMDs.” This section of...
by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
Rescissions As reported in last week’s Update, the Senate voted not to take up the bill that would have rescinded funds previously designated for the Children’s Health Insurance Program (CHIP) and other programs. Because the legislation was subject to a deadline of...
by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
As reported in last week’s Update, the House is expected to take up a broad immigration bill that is considered to be a compromise among “Republicans of all perspectives.” See the press release. The Border Security and Immigration Reform Act of 2018 (H.R. 6136) would...
by familyvoices | Jul 2, 2018 | Family Voices, NCFPP, Washington Update
As explained in last week’s Update, the president issued an Executive Order on June 20 to end the practice of separating children and their families when they enter the U.S. See The Executive Order Trump Claims Will End Family Separation, Explained (Vox, 6/21/18). The...
Encourage confidence to act with the creation of materials and guidance to equip network members to start, lead and sustain conversations to dismantle racism in healthcare of children and youth with special health care needs (CYSHCN).