by familyvoices | Aug 29, 2018 | NCFPP, Washington Update
CDC Expands Autism Monitoring Efforts (Disability Scoop, 8/23/18) The Centers for Disease Control and Prevention (CDC) has announced the availability of research grants to assess 16-year-olds who were previously identified as having autism symptoms when they were age...
by familyvoices | Aug 29, 2018 | NCFPP, Washington Update
Your Input Sought NEW Survey on attending genetics appointments after referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) — one of seven regional networks in the country funded by the Health Resources and Services...
by familyvoices | Aug 22, 2018 | NCFPP, Washington Update
TODAY: A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions Wednesday, August 22, 1:00-2:00 pm ET Lucile Packard Foundation for Children’s Health Background information. TODAY: Protecting Pregnant Women and Babies...
by familyvoices | Aug 22, 2018 | NCFPP, Washington Update
As reported in earlier Updates, Medicaid beneficiaries in Kentucky challenged the administration’s approval of the waiver application that would allow the state to establish work requirements for beneficiaries, among other things. A federal court invalidated approval...
by familyvoices | Aug 22, 2018 | NCFPP, Washington Update
Parents who failed screening interviews for their asylum cases are seeking a second chance to be interviewed. They allege that the interviews were improperly conducted, in part because the parents were traumatized from being separated from their children. See New...
by familyvoices | Aug 22, 2018 | NCFPP, Washington Update
Supreme Court nominee Brett Kavanaugh has been doing meetings with Senators in preparation for his confirmation hearing. Among those he has met with are moderate Democrats who are up for reelection this year and therefore might be open to voting for his confirmation. ...
Encourage confidence to act with the creation of materials and guidance to equip network members to start, lead and sustain conversations to dismantle racism in healthcare of children and youth with special health care needs (CYSHCN).