Family Voices Resources

Starting and Sustaining a Youth Advisory Board Webinar Series

Family Engagement / Kids As Self-Advocates (KASA) / Leadership in Family and Professional Partnerships / Webinar Archives / Youth Leadership / Youth Self-Advocate Resources


  • Date: 04/30/2019

This webinar series is especially for organizations that seek to develop a youth advisory board.

In Part 1, Matthew Shapiro of Kids As Self Advocates (KASA) will provide an overview of the value of having the perspective of youth/young adults with disabilities at decision-making meetings, and discuss elements of youth voice, such as:

  • The importance of building youth as self advocates
  • Where does self advocacy begin?
  • What is youth voice — what does it look and feel like?

In Part 2, attendees will learn the following:

  • What a self advocate looks like
  • What skills are necessary for a youth leader
  • What kind of training and mentoring is most helpful
  • Tips and best practices to grow a strong group of youth leaders

In Part 3, attendees will learn the following:

  • The nuts and bolts of establishing a board
  • Effective ways to keep it going
  • Suggestions to engage aged-out youth


  • Keywords: Youth, Advocate, Leader, KASA, webinar, advisory board

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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