NEW CMS Tribal LTSS Program Survey

This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The results will enable the sharing of LTSS best practices across Indian Country. Tribes and tribal organizations may provide these services directly, or through a contract or agreement with an outside organization.

Research Survey for Caretakers of Women with Intellectual and Developmental Disabilities

A researcher at Brandeis University is conducting a study on sexual and reproductive health care for women with intellectual and developmental disabilities. She is seeking family caregivers of such women to complete an online survey. The goal of the survey is to understand the perspectives and experiences of family caregivers about sexual and reproductive health care for women with intellectual and developmental disabilities. The survey is available here.


The Opioid Crisis: A Child’s Fight and a Mother’s Gain (HHS Blog, 7/18/18)

Bringing Trauma-Informed Care to Children in Need Can Ease Toxic Stress (STAT’s First Opinion, 12/6/17)

Children with Disabilities Endure Long Waits for Life-Changing Medical Equipment (Kaiser Health News, 7/19/18). This article is focused on California, and Juno Duenas, the executive director of the San Francisco-based Support for Families of Children With Disabilities – the state’s Family-to-Family Health Information Center – is mentioned in the article.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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