YOUR INPUT SOUGHT

Survey to Improve Caregiver Hospital Experience
The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies as a primary caregiver for someone with a condition, you are eligible to participate in this research study. The 3-minute survey is intended to help improve caregiver hospital stays. To take the survey, click HERE.

Electronic Health Information – due May 3, 2019
On Monday, February 11, 2019, the Centers for Medicare & Medicaid Services (CMS) released a proposed rule intended to facilitate the use of electronic health information and promote patient access to and control over their health information. See the CMS Fact Sheet CMS will accept comments on the major provisions in this proposed rule until early April (exact date will be updated upon posting at the Federal Register).

OF POSSIBLE INTEREST

China Announces Ban on All Types of Fentanyl, Fulfilling Promise to President Trump (Energy & Commerce Committee Republicans press release, 4/1/99).

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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