Washington Update: Your Input Sought (7/11/2018)

by | Jul 11, 2018 | NCFPP, Washington Update

NEW Best Practices in Guardianship

@SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by guardians, removing guardianships when no longer needed, and others. (Thanks to Jennifer Akers)

Research Survey for Caretakers of Women with Intellectual and Developmental Disabilities

A researcher at Brandeis University is conducting a study on sexual and reproductive health care for women with intellectual and developmental disabilities. She is seeking family caregivers of such women to complete an online survey. The goal of the survey is to understand the perspectives and experiences of family caregivers about sexual and reproductive health care for women with intellectual and developmental disabilities. The survey is available here.

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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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