Congress is still in recess, and will return on October 15. Outstanding issues to tackle when they get back include appropriations to keep the government funded past November 21, and legislation to address surprise medical bills and prescription drug costs. It is not clear whether a consensus can be reached on those contentious issues. On the judicial front, the US Circuit Court of Appeals for the 5th Circuit is expected to issue its decision soon in Texas v. United States, about whether the Affordable Care Act is constitutional. In other news, the Title V NOM/NPM data from the Combined 2017-2018 National Survey of Children’s Health are now available at www.childhealthdata.org!

IT’S RECESS! Members of Congress are home on a recess through October 14, which provides an opportunity for you to see them in their local offices or at town halls or other public events. It’s a great chance to educate them about CYSHCN and their families, and about your Family-to-Family Health Information Center. To get contact information for your Members of Congress, see www.contactingcongress.org, or www.senate.gov and www.house.gov. For a list of public events in your area, see the Town Hall Project.

Read this week’s issue here.

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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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