Not a lot happened during the past week in Washington…with respect to health care, that is.  The president signed the Autism CARES Act but, otherwise, policymakers and politicos have been preoccupied with other matters (i.e., the impeachment inquiry), which may interfere with the ability of the two parties and two branches of government to get much accomplished in the way of legislation.  In the judicial branch, however, a notable decision has been rendered: a federal appeals court ruled that the Department of Justice can move forward with a suit against Florida regarding the placement of children in nursing homes.  With respect to regulations and resources, this Update includes (among other things) information about: The Roadmap to Behavioral Health (for families); a statement from the FDA about patient engagement in medical device clinical investigations; quality ratings for health plans sold in the Marketplace; and a Final Rule on “Patients Over Paperwork” (in the Medicaid section below). And, please note…

IT’S RECESS! Members of Congress are home on a two-week recess (through October 14), providing an opportunity for you to see them in their local offices or at town halls or other public events. It’s a great chance to educate them about CYSHCN and their families, and about your Family-to-Family Health Information Center or other programs.  To get contact information for your Members of Congress, see www.contactingcongress.org, or www.senate.gov and www.house.gov. For a list of public events in your area, see the Town Hall Project.

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Read the rest of this week’s Washington Update here!

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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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