Long COVID Legislation
On March 15th, Senator Kaine (D-VA) and 10 Democratic co-sponsors, along with Representative Beyer (D-VA-8th) and Representative Bergman (D-MI-1st), introduced the Comprehensive Access to Resources and Education (CARE) for Long COVID Act ( S.801 / H.R.1616). This bill will work to improve the lives of those affected by Long COVID. Specifically, the bill will accelerate Long COVID research, improve the understanding of Long COVID treatment efficacy and disparities, educate Long COVID patients and medical providers through efforts at the Centers for Disease Control and Prevention (CDC) to develop and disseminate information on common symptoms and treatment for Long COVID and related conditions; facilitate interagency coordination to educate the public, including employers and schools, on the impact of Long COVID and the rights associated with employment, disability status, and education for individuals with Long COVID; and develop partnerships among community-based organizations, social service providers, and legal assistance providers to help individuals with Long COVID access needed services.

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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

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Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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