This week Members of Congress unveiled several bills that could affect families of children and youth with special health care needs. A conference agreement on the defense authorization bill would provide paid parental leave to all federal employees. This bill is likely to be enacted. A bipartisan, bicameral (House and Senate) bill was proposed to address surprise medical billing, and several different bills were proposed to address high prescription drug prices. Read about these issues and more in this week’s Update.

NOTE: The next Update will come out late next week so that it can include reports on last-minute congressional action before the Update takes a two week holiday break.

Remember, the ACA 2020 Open Enrollment Period ENDS ON SUNDAY, Dec. 15. See and resources at the end of this Update.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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