Congress was on recess last week, but here is some news from the week before:

Palliative Care Bill Approved by House Subcommittee

On June 27 the Health Subcommittee of the House Energy & Commerce Committee approved by voice vote the Palliative Care and Hospice Education and Training (PCHETA) Act (H.R. 1676). It will now go to the full committee. As summarized in the subcommittee’s background memo, the bill would direct HHS to award grants to improve the training of health professionals in palliative care; increase education and awareness about the benefits and services of palliative care, and enhance research on palliative care through leveraging existing authorities and funds at the National Institutes of Health (NIH). The bipartisan bill has 282 cosponsors, in addition to sponsors Eliot Engel (D-NY), Tom Reed (R-NY), and Earl Carter (R-GA). An identical bill (S. 693) has been introduced in the Senate by Senator Tammy Baldwin (R-WI) and Shelley Moore Capito (R-WV).

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Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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