Family Voices News
Prenatal-to-3 State Policy Roadmap
Check out the newly released 2024 Prenatal-to-3 State Policy Roadmap. The Roadmap provides a summary of state progress on the following 12 recommended policies and strategies. In addition, the Roadmap provides details on the impact of each recommendation, how to...
Medicaid’s Early and Periodic Screening, Diagnostic and Treatment (EPSDT) State Health Official (SHO) Guidance
What is EPSDT? EPSDT is a benefit for children that sets a higher standard for care than adults. What does EPSDT cover? Under the benefit, states must cover all “medically necessary” services needed to address the health and well-being of the child. This includes...
New Learning Collaborative Cohort on Financing Services for CYSHCN
Learning Collaborative Cohort 2 This Learning Collaborative (LC) will improve Family Engagement and Leadership in Systems of Care (FELSC). Family Voices leads this MCHB-funded cooperative agreement, and the Learning Collaborative is led by Family Voices and the...
AMCHP is Partnering with Family Voices for National Coordinating Center on Transition
The Project, which started on September 1, 2024, aims to develop and advance national, state, and local/community frameworks that support a successful transition from child to adult serving systems for youth with autism and/or epilepsy who have complex health and...
Two Pioneers Honored for Lifetime Achievements in Helping Children with Medical Complexity
The Maternal and Child Health Bureau’s Children and Youth with Special Health Care Needs Research Network (CYSHCNet) is pleased to announce Nora Wells and John Gordon as the 2024 recipients of The Pediatric Complex Care Lifetime Achievement Award.
Questions and Car Rides: The Journey of a Family Leader
by Coralaidee Jimenez Burgos, Family Representative with The Puerto Rico Department of Health Welcoming Felix When Felix was born, my soul was filled with joy, a love so strong it’s hard to describe. He was my lifelong dream come true. But my joy was short-lived;...
Meet Your F2F: Mississippi
Families as Allies was established in Mississippi in 1992 as the state chapter of the National Federation of Families and the only statewide organization run by and for families of children with mental health challenges. We support each other and work together to make...
New Report on Equitable Language Access in the Health Care Setting
Greater use and better quality of language access services in the health care setting can help children and youth with special health care needs experience better health outcomes. Family Voices completed an environmental scan, with the participation of over 600...
New Info Brief on Moving to Adult Health Care
Family Voices, in partnership with the Arc of the United States' National Center on Criminal Justice and Disability and the Center for Transition to Adult Health Care for Youth with Disabilities, just released an info brief called "Meeting the Health Care Transition...
Washington Update Dec 5, 2023
The first full week of December finds both the House and Senate busy at work to realize a number of priorities before the end of the year. Read the full newsletter here
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