Government Shuts Down Websites on Treatment and Quality Guidelines

On July 16, the administration took down two “microsites” from the website of the Agency for Healthcare Research and Quality (AHRQ) – the National Guideline Clearinghouse (, a source of vetted treatment guidelines for health care providers, and the National Quality Measures Clearinghouse ( See The Trump Administration Is about to Delete an Important Medical Resource (Vox, 7/16/18), and the administration’s Statement about the National Guideline Clearinghouse.


Spurring Innovation: The Role of Child Health Policy

A new report from AcademyHealth and Nemours reflects expert recommendations aimed at advancing child health policy on four pressing issues including Medicaid and CHIP delivery and payment reforms, consumer digital health, precision medicine, and opioid addiction and neonatal abstinence syndrome.


Referral and Care Coordination Forms

(National Academy for State Health Policy)

On this page, you can find examples of referral forms that are compliant with federal health (HIPAA) and education (FERPA) privacy and confidentiality requirements; feedback forms to inform primary care providers of the results of evaluations; and referral guidelines. The site also provides a map showing states that have standardized referral forms.  

A Guide to Taking Care of Your Family Member after Treatment in the Emergency Department (for attempted suicide).

SAMHSA has published an update to this guide that offers information about what to expect in the emergency room, and how to take care of yourself and your family member following a suicide attempt. This guide is also available in Spanish language. (From the Substance Abuse and Mental Health Services Administration.)

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With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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