National Health Care Transition Resource Center
For Youth and Young Adults with Intellectual and Developmental Disabilities
Family Voices is proud to have been awarded a five-year contract from The Department of Health and Human Services, Administration for Community Living, to empower youth and young adults with intellectual and developmental disabilities to manage their health care transitions.
Family Voices leads this project, in partnership with Got Transition, SPAN NJ, University of Missouri Kansas City, and the Waisman Center, to empower youth and young adults ages 12-26 with ID/DD and their caregivers/families to manage HCTs with no reduction in quality of care or gaps in service.
The project will create a youth-driven National Health Care Transition Resource Center (NHCTRC) for Y/YA with ID/DD and will help these youth to direct their own transition from pediatric to adult models of care.
This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.
For more information, contact:
Allysa Ware, Ph.D., MSW
Family Voices is the lead organization in ACL’s grant for Empowering Youth with Intellectual and Developmental Disabilities to Manage their Healthcare Transitions. We are developing a national resource center where youth, families and health care providers can find...
One of the key products from the first year of the project was a data profile, completed by our partners at Got Transition, of what we know about youth with intellectual and developmental disabilities and their transition to adult health care.
A recent blog post published in the AAP Journals Blog, authored by Family Voices Program Manager Nikki Montgomery, explores "Transition of Care for Children with Disabilities: How You Can Advocate for Your Child." Read the full blog post on aap.org
National Healthcare Transition Resource Center for Youth with Intellectual and Developmental Disabilities Funded to Bring Needed Transition Services to Youth and Young Adults
Lexington, MA (September 30, 2021) — Family Voices is pleased to announce that we have received a new five-year funding award from the U.S. Department of Health and Human Services, Administration for Community Living, to support a National Healthcare Transition...
We are excited to share a youth engagement opportunity with the new National Health Care Transition Resource Center for Youth and Young Adults with Intellectual and Developmental Disabilities. About the National Health Care Transition Resource Center (NHCTRC) The...