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Projects / National Health Care Transition Resource Center

Project Overview

Family Voices is proud to have been awarded a five-year contract from The Department of Health and Human Services, Administration for Community Living, to empower youth and young adults with intellectual and developmental disabilities to manage their health care transition.

Family Voices leads this project, in partnership with Got Transition, SPAN NJ, University of Missouri Kansas City, and the Waisman Center, to empower youth and young adults ages 12-26 with ID/DD, and their caregivers and families, to manage health care transition with no reduction in quality of care or gaps in service.

Logo for Center for Transition to Adult Health Care for Youth with Disabilities

This project is creating the youth-driven Center for Transition to Adult Health Care for Youth with Disabilities, a national health care transition resource center for youth and young adults with ID/DD to direct their own transition from pediatric to adult models of care. Learn more and find resources for youth, families and health care professionals at movingtoadulthealthcare.org.

This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.

For more information, contact:
Allysa Ware, Ph.D., MSW
Primary Investigator
anware@familyvoices.org
240-499-5678

Related Projects

Meeting Health Care Transition (HCT) Needs of Youth with ID/DD Who Have Been in Detention

Funded by the WITH Foundation (September 2022 – August 2023)

Advancing the Quality of Health Care Transition for Black Autistic Adolescent Girls

Funded by the WITH Foundation (March 2023 – February 2024)

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Social Media

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News

Reflecting on Health Care Transition

Feb 3, 2024

Now that I am leaving the Youth Steering Committee, I will miss this community, but I know that each of you will continue to fight for people like us, to be treated equally and fairly when we need healthcare.

First Year of the National Health Care Transition Resource Center

Jan 19, 2023

Family Voices is the lead organization in ACL’s grant for Empowering Youth with Intellectual and Developmental Disabilities to Manage their Healthcare Transitions. We are developing a national resource center where youth, families and health care providers can find...

Data Profile on Health Care Transition for Youth with ID/DD

Nov 29, 2022

One of the key products from the first year of the project was a data profile, completed by our partners at Got Transition, of what we know about youth with intellectual and developmental disabilities and their transition to adult health care.

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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