National Health Care Transition Resource Center
For Youth and Young Adults with Intellectual and Developmental Disabilities
Logos of Family Voices, Got Transition, UMKC Institute for Human Development, and Span Parent Advocacy Network.

Projects / National Health Care Transition Resource Center

Project Overview

Family Voices is proud to have been awarded a five-year contract from The Department of Health and Human Services, Administration for Community Living, to empower youth and young adults with intellectual and developmental disabilities to manage their health care transitions.

Family Voices leads this project, in partnership with Got Transition, SPAN NJ, University of Missouri Kansas City, and the Waisman Center, to empower youth and young adults ages 12-26 with ID/DD and their caregivers/families to manage HCTs with no reduction in quality of care or gaps in service.

The project will create a youth-driven National Health Care Transition Resource Center (NHCTRC) for Y/YA with ID/DD and will help these youth to direct their own transition from pediatric to adult models of care.

This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.

For more information, contact:
Allysa Ware, MSW
Primary Investigator
anware@familyvoices.org
240-499-5678

News

Call for YSC applications

We are excited to share a youth engagement opportunity with the new National Health Care Transition Resource Center for Youth and Young Adults with Intellectual and Developmental Disabilities. About the National Health Care Transition Resource Center (NHCTRC) The...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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