Family Voices: Family Engagement in Systems Change

Publications

Family Engagement at the Systems Level: A Framework for Action

The value of incorporating families’ lived experience in systems-level activities is well understood by health care providers and policymakers. However, little detail exists about what information and supports are needed to assist families and professionals throughout the process of engaging with families. In this article, Family Voices presents a framework for meaningful family engagement, developed through a review of peer-reviewed publications and grey literature, key informant interviews, and collaboration with a Family/Professional Expert Workgroup.

Issue Brief: A Framework for Assessing Family Engagement

Learn about the four domains of family engagement and the key criteria that support meaningful family engagement in systems-level initiatives.

Literature Review: Family Engagement in Systems

An environmental scan of peer-reviewed and white papers that describe systems that are currently engaging families in systems-change.

Moving Beyond the Family Engagement Check Box: An Innovative Partnership to Promote Authentic Family Engagement in Systems Change

By Family Voices and the Center for the Study of Social Policy (CSSP). Provides an example of the use of the Family Engagement in Systems Framework to engage families in a national initiative to transform pediatric practice and improve the social and emotional development of young children in the national Pediatrics Supporting Parents (PSP) initiative to promote the social and emotional development (SED) of young children.

The Family Voices Family Engagement in Systems Assessment Tools: Case Studies to Highlight Three Uses of the Tools

This publication includes background information about the FESAT, and profiles three organizations that used the FESAT to ensure meaningful family engagement in systems change.

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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