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Family Voices is providing national leadership on family engagement to support youth and family leaders, Maternal and Child Health (MCH) programs, and other stakeholders that serve children and youth with special health care needs (CYSHCN).  We are convening a Youth Engagement Work Group and a Family Engagement Work Group to help us learn about the best ways to engage youth and families in improving health and care. 

We value your experience and expertise. Work group members will be paid $135 each month for their participation.  

If you have any questions about your organization’s role on either work group, please reach out to Lisa Maynes at lmaynes@familyvoices.org.

What the Youth Engagement and Family Engagement Work Groups Do

  • Meet virtually each month from July 2023 to May 2024
  • Work with Family Voices to learn about what works best to engage families and young people in improving health and care
  • Learn about barriers to youth and family engagement
  • Plan and conduct focus groups with youth, families, and professionals
  • Help prepare a survey to learn more about what we hear from the focus groups

FELSC Youth Engagement Work Group

Selecting your organization’s representative: Who are we looking for? 

  • Young people aged 16-26 with lived experience of having special health care needs or a disability
  • Young people who can attend virtual meetings and participate in discussions about improving youth engagement in care (disability accommodations are available)

Download the Youth Engagement Work Group Printable Flyer in English or Spanish.

FELSC Family Engagement Work Group

Selecting your organization’s representative: Who are we looking for? 

  • People with lived experience as caregivers of a child with special health care needs or a disability
  • People who can attend virtual meetings and participate in discussions about improving family engagement in care (disability accommodations are available)

Download the Family Engagement Work Group Printable Flyer in English or Spanish.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of