Last week the Subcommittee on Health of the House Committee on Energy and Commerce held a hearing and approved a new version of the bipartisan ACE Kids Act, which would provide Medicaid reimbursement for states that choose to establish health homes for children with medically complex conditions, in order to better coordinate their care. The bill, sponsored by Rep. Joe Barton (R-TX) and Rep. Kathy Castor (D-FL), is a high priority for Rep. Barton, who is retiring from Congress at the end of the year. Family Voices and other children’s health organizations have been providing input to committee staff with the aim of ensuring that families would have a choice about whether their children will participate in a health-home program, among other things. There is a similar companion bill in the Senate, which has been referred to the Finance Committee. An explanation of the bill can be found in the subcommittee background memo (p. 1-2). More information can be found on the website of the Children’s Hospital Association, which has promoted the legislation.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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