Last week the Subcommittee on Health of the House Committee on Energy and Commerce held a hearing and approved a new version of the bipartisan ACE Kids Act, which would provide Medicaid reimbursement for states that choose to establish health homes for children with medically complex conditions, in order to better coordinate their care. The bill, sponsored by Rep. Joe Barton (R-TX) and Rep. Kathy Castor (D-FL), is a high priority for Rep. Barton, who is retiring from Congress at the end of the year. Family Voices and other children’s health organizations have been providing input to committee staff with the aim of ensuring that families would have a choice about whether their children will participate in a health-home program, among other things. There is a similar companion bill in the Senate, which has been referred to the Finance Committee. An explanation of the bill can be found in the subcommittee background memo (p. 1-2). More information can be found on the website of the Children’s Hospital Association, which has promoted the legislation.

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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