by familyvoices | Aug 8, 2018 | Policy Action, Washington Update
The National Institute of Nursing Research (NINR) has developed the Palliative Care: Conversations Matter ® campaign to increase the use of palliative care for children and teens living with serious illnesses. Provided on the campaign website are materials for...
by familyvoices | Jul 25, 2018 | NCFPP, Policy Action, Washington Update
NEW Managed Long-Term Services and Supports (MLTSS) for People with Intellectual and Developmental Disabilities: Strategies for Success Wednesday, July 25, 12:30 pm-1:30 pm ET National Association of States United for Aging and Disabilities (NASUAD) Ticket to Work...
by familyvoices | Jul 25, 2018 | NCFPP, Policy Action, Washington Update
As reported in last week’s Update a federal court ordered that children under age five be reunited with their families by July 10, and that all other children be reunited with their families by July 26. The administration did not meet the first deadline; only about...
by familyvoices | Jul 25, 2018 | NCFPP, Policy Action, Washington Update
On July 17, the Senate approved a House-passed bill to delay for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The...
by familyvoices | Jul 25, 2018 | NCFPP, Policy Action, Washington Update
As reported by the House Energy and Commerce Committee, the House passed several bipartisan health-related bills this week: The Palliative Care and Hospice Education and Training Act (R. 1676), which would direct HHS to award grants to improve the training of...
by familyvoices | Jul 25, 2018 | NCFPP, Policy Action, Washington Update
On July 20, House Democrats launched a “Medicare-for-All” congressional caucus with the intention of educating other lawmakers and staff on the basics of a government-run, single-payer health care system, and of examining how other such systems operate in...
Encourage confidence to act with the creation of materials and guidance to equip network members to start, lead and sustain conversations to dismantle racism in healthcare of children and youth with special health care needs (CYSHCN).