On July 26, Rep. Diana DeGette (D-CO) and others introduced a bipartisan bill — The Children’s Program of All-Inclusive Coordinated Care (ChiPACC) Act (H.R. 6560) – which would fill gaps in hospice and palliative services that children now receive under Medicaid. The bill would require Medicaid to provide children with specialized care plans covering a range of services – palliative, counseling, respite, expressive therapy, and bereavement. See the DeGette press release.
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All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.
Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.
To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742
Encourage confidence to act with the creation of materials and guidance to equip network members to start, lead and sustain conversations to dismantle racism in healthcare of children and youth with special health care needs (CYSHCN).