Family Voices Affiliate Organizations (FVAOs)

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What is a Family Voices Affiliate Organization?

A Family Voices Affiliate Organization (FVAO) is a statewide/territory-wide/tribal, parent/family-led non-profit organization, with a Board composed of a majority of family members of CYSHCN, that meets the requirements of an FVAO and works to advance the mission, vision, and principles of Family Voices.  FVAOs are a critical part of our collective effort to keep families at the center of children’s health care.

There is an FVAO in most states, and only one FVAO is approved per state.  In many cases, the FVAO is the same organization that serves as the Family-to-Family Health Information Center (F2F) in that state, though not in all cases.

FVAOs stay connected through a listserv, national meetings, monthly national calls, and quarterly regional calls.  The affiliate network works with the Family Voices policy team to inform our policy work and take collective action.

If your organization is interested in becoming a Family Voices affiliate, please contact Ian Whitney for more information and an application.

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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