Participación de la Comunidad

“Nunca dudes que un
pequeño grupo de
ciudadanos considerados,
comprometidos
pueden cambiar el mundo.
Verdaderamente, esta es
la única cosa que siempre
lo logrará”.
Margaret Mead

Resources:

Family Involvement in Social Change

“Never doubt that
a small group of
thoughtful,
committed citizens
can change the
world. Indeed, it is
the only thing that
ever has.”
Margaret Mead

Resources:

Voces De Familia Información Sobre Las Guías Del Bloque De La Subvención Del Titulo V

“Mantener las familias en el centro del cuidado de
la salud de los niños”

Presentado por:
Mercedes Rosa & Jeannette Mejías
Adiestramiento en Puerto Rico
25 de febrero de 2016

Resources:

MCH Transformation-Title V Block Grant Guidance: Sections in the Guidance Where Family & Consumers are Mentioned

  • This PowerPoint provides a brief history of Title V and;
  • Highlights MCH Transformation of Title V;
  • Highlights the Guidance sections where
    family/consumers are mentioned in the areas of
    involvement, engagement and partnership.
Resources:

Cuentame Tu Historia: Guía y Cuaderno de Trabajo para Padres

Cuentame Tu Historia: Guía y Cuaderno de Trabajo para Padres

  1. Identifica tu problema
  2. Desarrolla tu historia
  3. Define tu solicitud

Recuperado de spanadvocacy.org

Telling Your Story: A Parent Guide & Workbook

Telling Your Story: A Parent Guide & Workbook

  1. Identify your issue
  2. Develop your story
  3. Define your request

Retrieved from spanadvocacy.org

Child Developmental Passport

The Child Developmental Passport includes:

  • Definitions of Developmental Monitoring and Screening
  • Well-Child Visit Tracker to track child’s height, weight, immunizations, etc.,
  • Developmental Tracker to track child’s developmental and/or autism screening information including results and referrals for follow-up
  • Notes Section to make notes related to child’s growth and development
  • Contact information for NJ Early Intervention, Project Child Find, Statewide Parent Advocacy Network (SPAN), and Help Me Grow NJ’s Central Phone Line

This booklet has been adapted from the CDC Learn the Signs. Act Early. materials, with the support from
the following organizations: SPAN Parent Advocacy Network, New Jersey Department of Children and Families, ECCS COIIN, Help Me Grow New Jersey, and the Division of Family and Community Partnerships.

Retrieved from spanadvocacy.org

Resources:

Pasaporte Para el Desarrollo del Niño

Ayúdame a Crecer NJ
Pasaporte Para el Desarrollo del Niño

Una herramienta para los padres para hacer seguimiento
de salud y el bienestar de su niño

Este folleto ha sido adaptado del CDC Learn the Signs. Act Early. materiales, con el apoyo de las siguientes organizaciones: SPAN Parent Advocacy Network, New Jersey Department of Children and Families, ECCS COIIN, Help Me Grow New Jersey, and the Division of Family and Community Partnerships.

Recuperado de spanadvocacy.org

Being a Healthy Adult: How to Advocate for Your Health and Health Care

The purpose of this guide is to teach young adults with disabilities how to become strong self-advocates for their own health and health care. The guide includes activities, worksheets, and tips for communicating effectively with health care providers, keeping track of personal health information, and figuring out what supports will help each individual make the health-related choices that are right for him or her.

Roberson, K. (2010). Being a healthy adult: How to advocate for your health and health care.
New Brunswick, NJ: The Elizabeth M. Boggs Center on Developmental Disabilities.

Source: http://rwjms.rutgers.edu/boggscenter/products/BeingaHealthyAdult.html

Derechos de Educación de las Familias y Estudiantes Inmigrantes

“El propósito del folleto es educar a los padres inmigrantes acerca de las leyes estatales y federales que les garantizan acceso a servicios de educación pública y el derecho a recibir material en su idioma nativo. En la primera sección se hace referencia a extractos de estas leyes y se presentan útiles resúmenes del significado de la terminología legal para los padres. Algunas de las leyes descritas no se relacionan directamente con el acceso al idioma pero contienen información importante que los padres inmigrantes necesitan conocer.”

Este juego de herramientas fue posible gracias a “A Voice for Immigrant Children,” un proyecto de el New Jersey Immigration Policy Network fundado por el Schumann Foundation.
Partes de este juego de herramientas fueron adaptadas de la presentación “Ensuring Effective Services to Immigrant &/or LEP/ELL Children & Families: It’s Right, & It’s the Law!” © Statewide Parent Advocacy Network

Recuperado de spanadvocacy.org

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of