Getting to Know Title V: Slide Show and Booklet

A reference tool that describes Title V mission, history, and services and how families participate in Title V programs and policies.

  • Source: Family Voices

Data Use Guidelines

Family Voices’ guidelines on using data effectively to tell a story.

  • Source: Family Voices

Disasters and Emergencies: Keeping Children and Youth Safe

Resource page and tip sheet about keeping children and youth with special health care needs safe during disasters and emergencies.

  • Source: Family Voices

Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers

The purpose of this booklet is to provide information about one approach to family and community engagement – working with community liaisons and cultural brokers. This booklet is grounded in the knowledge and experiences of the Family Voices network* and family leaders around the country who have shared what they have learned in their efforts to serve the full range of families of children and youth with special health care needs and/or disabilities.

  • Source: Family Voices

Families in Program and Policy FiPPs Reports – MCH and CYSHCN

Summary of results of interviews conducted with state Title V MCH and Title V CSHCN Directors/Staff regarding participation of families in program and policy activities.


  • Source: Family Voices

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of