Lead Exposure and Prevention Webinar

Presented by MotherToBaby and Family Voices: As parents or when planning to start a family, it’s important to know and understand how to achieve the best care and health for children, but where do you begin? Right at home! Houses, especially older ones, can be a source of lead exposure. Although lead-based paint hasn’t been sold since the late 70s, many older homes still have it. Learn about the available resources supporting families who are exposed to lead.


Webinar: Community Health Worker’s (CHW)/Promotores de Salud history and process

This webinar explores the role of a CHW, new legislation around certification, and how staff can be trained to become one.  F2Fs, AOs, and P2Ps are the intended audience.

Intro to the Family Engagement in Systems Tools (FESAT) Webinar

Families can be important drivers of systems change, using their experiences and expert knowledge in partnership with professionals to ensure that all children receive health care in a well-functioning system. Family Voices, in partnership with experienced family leaders and professional partners from community, academic, public health, and pediatric settings, has developed a Family Engagement in Systems Toolkit for assessing and improving family engagement in child- and family-serving organizations.

In this webinar:

1. Learn about the various uses of the FESAT.
2. Preview the supporting set of resources in the FES Toolkit.
3. Learn how the FESAT could be used with your organizational partners to assess and improve family engagement in systems-level initiatives.


AMCHP and Family Voices 3-part webinar series, state Title V

AMCHP and Family Voices presents a 3-part webinar series to support state Title V programs to engage families across all five population health domains. Each webinar is one hour in length.

Beyond CYSHCN: Engaging Women & Youth in Title V Programs and Activities
Wednesday, December 18, 2019
Listen to the recording and view the slides from the webinar below.
Recording (audio)

Meet Families Where they Are: Strategies and Inclusive Formats to Engage Diverse and Medically Underserved Families
Wednesday, January 8, 2020

Preparing Families to Participate
Wednesday, February 12, 2020

Leadership in Family and Professional Partnerships (LFPP): What It Is and How You Can Benefit

Learn about the work of the Family Voices Leadership in Family and Professional Partnerships (LFPP) program and how to access its resources and offerings!

The LFPP is funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) as a cooperative agreement from June 2019 to May 2022. This webinar shares details on the LFPP focus areas of:

    • Assistance and Training on Family Engagement to Family-to-Family Health Information Centers (F2Fs), Title V programs, and other CYSHCN stakeholders on family engagement at all levels of health care, with an emphasis on underserved communities. F2Fs will receive assistance and training to support their organizational capacity, overall program goals, and reporting.
    • Partnership and Collaboration with organizations serving CYSHCN and diverse, medically underserved communities to identify best practices, materials and resources related to family engagement and to identify opportunities for collaboration.
    • National Dissemination to CYSHCN stakeholders on family engagement resources, best practices, and emerging state and federal policy trends impacting CYSHCN and their families.

Starting and Sustaining a Youth Advisory Board Webinar Series

This webinar series is especially for organizations that seek to develop a youth advisory board.

In Part 1, Matthew Shapiro of Kids As Self Advocates (KASA) will provide an overview of the value of having the perspective of youth/young adults with disabilities at decision-making meetings, and discuss elements of youth voice, such as:

  • The importance of building youth as self advocates
  • Where does self advocacy begin?
  • What is youth voice — what does it look and feel like?

In Part 2, attendees will learn the following:

  • What a self advocate looks like
  • What skills are necessary for a youth leader
  • What kind of training and mentoring is most helpful
  • Tips and best practices to grow a strong group of youth leaders

In Part 3, attendees will learn the following:

  • The nuts and bolts of establishing a board
  • Effective ways to keep it going
  • Suggestions to engage aged-out youth

Setting Up and Preparing for Hill Visits 2019 Webinar

Funding for Family-to-Family Health Information Centers (F2Fs) needs to be reauthorized this year, and it’s important to educate Members of Congress about the extraordinary work that F2Fs do to serve families.

On this webinar, Family Voices Policy Director Janis Guerney will go over the specifics of making an appointment with your Congressional offices, talk about preparation and topics to discuss, and answer any questions you have about the process.

How Family Organizations can Help Shape and Implement the Title V Block Grant

How can family organizations maximize their meaningful involvement throughout the Block Grant process, both procedurally and substantively? How can they most effectively shape the components of the Block Grant, especially in this 5-year needs assessment year? Where are the “entry points” into the Block Grant development and implementation process?

This webinar will explore these questions and provide participants with strategies to:

  • Demonstrate their value-add to MCH state agencies
  • Engage a wide variety of family and youth perspectives in the Block Grant process
  • Have the greatest possible influence on the process, “from start to finish to starting again!”

Building Partnerships and Educating Families and Professionals about Supported Decision-Making Webinar

In this webinar from Family Voices and Quality Trust’s National Resource Center for Supported Decision-Making, you’ll hear from three Family-to-Family Health Information Centers on how they are helping to educate families, health care providers, legal professionals, and others about Supported Decision-Making (SDM) as an alternative option to guardianship for transition age youth.

There will also be time for YOU to share strategies and educational materials you have used to help families use supported decision-making.


Elizabeth Hecht, co-director of Family Voices of Wisconsin and Outreach Specialist for Public Policy, Waismann Center, educates families and medical providers about Supported Decision-Making and serves on a Working Interdisciplinary Network of Guardianship Stakeholders (WINGS) and a Wisconsin Community of Practice on SDM.

Janna Murrell, Assistant Executive Director of Raising Special Kids, leads collaborative efforts with Arizona’s Division of Developmental Disabilities to create a training for parents and professionals: “Legal Options, Turning 18? What’s Next.” As the parent of a young man with cerebral palsy, she has benefited from parent to parent support to increase her knowledge of options for individuals transitioning to adult lives.

Carrie Woodcock is the Executive Director, Maine Parent Federation, and Project Director for their Supported Decision-Making program, which helps youth and families explore alternative options to guardianship, as well as options within guardianship.

Morgan Whitlatch, Legal Director for Quality Trust for Individuals with Disabilities and Lead Project Director of the National Resource Center for Supported Decision-Making, will answer questions about their center and promising educational approaches and strategies to advance Supported Decision-Making.


Collaborating with Non-Traditional Partners to Develop Diverse Family Leaders

Developing and supporting diverse family leaders is critical to ensuring that national, state, and local policies and programs meet family needs and the needs of their children.  Four family organizations will present their work collaborating with non-traditional partners to identify, recruit, train, and support family leaders representing the diversity of their states and communities, including Latinas, Marshallese, and a variety of Native American tribal communities.
Panelists include representatives from Family Voices Indiana, Oklahoma Family Network, South Carolina Family Connection, and Washington PAVE.  The webinar will be facilitated by Mercedes Rosa, Family Engagement and Leadership Develpoment Coach, NCFPP.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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