Improving Health Care Transition through Tele-Transition Services

Health care transition, or HCT, is about moving to an adult model of care where you are the main person making decisions about your health. For many youth and young adults, this can be a challenging process. In our new virtual world full of telehealth doctor appointments, how can we make the transition to adult health care smoother? Having a joint telehealth visit could be a good place to start, especially if you have a chronic condition. This is a virtual meet-and-greet appointment that can help prepare you for your transition to a new adult doctor.

This webinar from Got Transition, CT KASA, and Family Voices highlights a new video and social story that can help you learn about how to engage in tele-transition services to help you transition from a pediatric provider to an adult provider.

This program is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $1,000,000 with 0% financed with non-governmental sources. The contents are those of the authors and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov

Resources:

Starting and Sustaining a Youth Advisory Board Webinar Series

This webinar series is especially for organizations that seek to develop a youth advisory board.

In Part 1, Matthew Shapiro of Kids As Self Advocates (KASA) will provide an overview of the value of having the perspective of youth/young adults with disabilities at decision-making meetings, and discuss elements of youth voice, such as:

  • The importance of building youth as self advocates
  • Where does self advocacy begin?
  • What is youth voice — what does it look and feel like?

In Part 2, attendees will learn the following:

  • What a self advocate looks like
  • What skills are necessary for a youth leader
  • What kind of training and mentoring is most helpful
  • Tips and best practices to grow a strong group of youth leaders

In Part 3, attendees will learn the following:

  • The nuts and bolts of establishing a board
  • Effective ways to keep it going
  • Suggestions to engage aged-out youth

Youth; Articles

This is a collection of KASA (Kids As Self-Advocates) articles created for youth, by youth.

Reviewed 2019.

 

 

Youth; Civil Rights and Advocacy

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about civil rights and advocacy.

Reviewed 2019.

Youth; Education

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about education.

Reviewed 2019.

Youth; Health

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about health.

Reviewed 2019.

Youth; Work

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about working.

Reviewed 2019. 

Youth; Sports, Leisure, Recreation

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about sports, leisure and recreation.

Reviewed 2019.

Youth; Dating and Relationships

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about dating and relationships.

Reviewed 2019.

Youth; Transportation and Getting Around

This collection of KASA (Kids As Self-Advocates) resources is created for youth, by youth, about transportation and getting around.

Reviewed 2019. 

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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