Improving Health Care Transition through Tele-Transition Services

Health care transition, or HCT, is about moving to an adult model of care where you are the main person making decisions about your health. For many youth and young adults, this can be a challenging process. In our new virtual world full of telehealth doctor appointments, how can we make the transition to adult health care smoother? Having a joint telehealth visit could be a good place to start, especially if you have a chronic condition. This is a virtual meet-and-greet appointment that can help prepare you for your transition to a new adult doctor.

This webinar from Got Transition, CT KASA, and Family Voices highlights a new video and social story that can help you learn about how to engage in tele-transition services to help you transition from a pediatric provider to an adult provider.

This program is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $1,000,000 with 0% financed with non-governmental sources. The contents are those of the authors and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov

Resources:

Lead Exposure & Prevention Webinar

Presented by MotherToBaby and Family Voices: As parents or when planning to start a family, it’s important to know and understand how to achieve the best care and health for children, but where do you begin? Right at home! Houses, especially older ones, can be a source of lead exposure. Although lead-based paint hasn’t been sold since the late 70s, many older homes still have it. Learn about the available resources supporting families who are exposed to lead.

Resources:

Talking with Young Children, Children with I/DD, and Teens about Racism, Police Brutality, and Protests

Many families are searching for resources to talk with their children of all ages about racism. This three-part series of Resource e-Blasts for Families includes resources on connecting/having these conversations focused on three audiences: young children, children of all abilities, and teens.

 

Webinar: Community Health Worker’s (CHW)/Promotores de Salud history and process

This webinar explores the role of a CHW, new legislation around certification, and how staff can be trained to become one.  F2Fs, AOs, and P2Ps are the intended audience.

Partnering for Success: How Family Organizations and Title V Agencies can Utilize the Data Resource Center for Child and Adolescent Health

This webinar, jointly presented by the Child and Adolescent Health Measurement Initiative (CAHMI) and Family Voices/Leadership in Family and Professional Partnerships, shares how to access and use the Data Resource Center for Child and Adolescent Health’s resources and state by state data findings from the National Survey of Children’s Health,* including:
  • Easy to understand “learn about the survey” resources
  • An interactive online data query to obtain findings for your state and by child subgroups
  • Across state comparison tables and maps
  • Annotated downloadable NSCH data sets and codebooks
The webinar focuses on making use of Title V National Outcome and Performance Measures, including:
  • Accessing state-level data that can be used for needs assessments and reports
  • Submitting technical assistance requests for additional help.
*The NSCH is funded and directed by HRSA MCHB and the DRC, a project of the CAHMI, is supported by HRSA MCHB.

Resource eBlast: COVID-19 Series, April 2020

This special Resource eBlast series focuses on a variety of topics aimed to support families of CYSHCN in the context of COVID-19.

Giannina Lopez Perez of the Puerto Rico Family-to-Family Health Information Center translated the first three parts of the series to Spanish to share with families in Puerto Rico.

Juntos, Podemos Mover Montañas: Padres Líderes en el Mejoramiento de los Sistemas Para Niños y Familias

Juntos, Podemos Mover Montañas: Padres Líderes en el Mejoramiento de los Sistemas Para Niños y Familias

© Statewide Parent Advocacy Network

  • Source: testingaaa
Resources:

Together, We Can Move Mountains: Parents as Leaders in Improving Systems for Children & Families

Together, We Can Move Mountains: Parents as Leaders in Improving Systems for Children & Families

© Statewide Parent Advocacy Network

Resources:

Involucrando a las Familias en el Liderazgo Para Los Cambios del Sistema

Involucrando a las Familias en el Liderazgo Para Los Cambios del Sistema

Presentado por:
Mercedes Rosa & Jeannette Mejías
Adiestramiento en Puerto Rico
25 de febrero de 2016
© SPAN 2016

Resources:

Engaging Diverse Families in Leadership for Systemic Change

Engaging Diverse Families in Leadership for Systemic Change

Presented by:
Diana Autin
Executive Co-Director, SPAN
Board Member, National FFCMH
FFCMH Conference 2015
© SPAN 2015

Resources:

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of