Model for Meaningful Family Engagement

Family Voices is a partner to the Genetic Alliance’s National Genetics Education and Family Support Center. This tip sheet was created in response to the Regional Genetics Networks (RGN) request for information to support and ensure meaningful family engagement in genetic services. This information was adapted from the Family Voices Framework for Assessing Family Engagement in Systems Change.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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