Family Voices Resources

Model for Meaningful Family Engagement

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Family Voices is a partner to the Genetic Alliance’s National Genetics Education and Family Support Center. This tip sheet was created in response to the Regional Genetics Networks (RGN) request for information to support and ensure meaningful family engagement in genetic services. This information was adapted from the Family Voices Framework for Assessing Family Engagement in Systems Change.

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

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Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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