Family Voices Resources

Being a Healthy Adult: How to Advocate for Your Health and Health Care

Youth Self-Advocate Resources

  • Date: 02/10/2020

The purpose of this guide is to teach young adults with disabilities how to become strong self-advocates for their own health and health care. The guide includes activities, worksheets, and tips for communicating effectively with health care providers, keeping track of personal health information, and figuring out what supports will help each individual make the health-related choices that are right for him or her.

Roberson, K. (2010). Being a healthy adult: How to advocate for your health and health care.
New Brunswick, NJ: The Elizabeth M. Boggs Center on Developmental Disabilities.


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With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

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Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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