
Public Policy
Policy Priorities to Support Children with Special Health Care Needs and Disabilities and Their Families
Our Strategic Policy Priorities
Children and youth with special health care needs and disabilities, and their families, face systemic barriers and biases that impede their ability to experience their best possible lives. Systems of care do not respond to their needs holistically or facilitate access to supports that enhance their quality of life.
To make the most impact, we focus our policy actions across all levels of government – federal, state, and local. We work with our family and organizational partners to lean on the various levers of policy change through education and advocacy.
Our current policy agenda includes:
- Expand access to peer-to-peer support for families of children and youth with special health care needs
- Support and expand Medicaid coverage for children and youth with special health care needs and their families and caregivers
- Improve the transition to adult health care for youth and young adults with disabilities and their caregivers and families
- Eliminate language access barriers
Family Voices collaborates with national child health and disability organizations, such as the Consortium for Citizens with Disabilities, The Arc, Autism Speaks, the American Academy of Pediatrics, and other groups.
Recent Policy-Related News
Reconciliación presupuestaria e impacto en Medicaid: Actualización del Senado – junio del 2025
Durante el último mes, el Senado comenzó a introducir cambios en el proyecto de ley “One Big Beautiful Bill Act” de la Cámara de Representantes. El 16 de junio, el Comité de Finanzas del Senado publicó su propuesta con algunos cambios con respecto a la versión de la...
Budget Reconciliation and Medicaid Impacts: Senate Update – June 2025
Over the past month, the Senate began making changes to the House’s One Big Beautiful Bill Act. On June 16, the Senate Finance committee released their proposed language with a few changes compared to the House version. The Senate is still working through the Byrd...
Junio del 2025: Estado de la reautorización de los F2F: Sin cambios
Los programas de los Centros de Información sobre la Salud de Familia a Familia (F2F, por sus siglas en inglés) se financian mediante una resolución continua hasta septiembre de 2025. Family Voices sigue colaborando con la congresista Mikie Sherrill (demócrata de...
June 2025 F2F Reauthorization Status – No Update
F2Fs are funded through the continuing resolution through September 2025. Family Voices continues to work with Congresswoman Mikie Sherrill (D-NJ) and Congresswoman Monica De La Cruz (R- TX) to advance the F2F bill in the House Energy & Commerce Committee – HR...
1115 Waiver Amendments – June 2025 Update: Open Comment Periods
Learn more about proposed Medicaid 1115 Waiver amendments for Iowa. For more information, reach out to Wesley at publicpolicy@familyvoices.org. Iowa – Iowa’s 1115 proposal is looking to add work requirements for non-exempt Medicaid expansion adults aged 19 to 64....
Legislation
The legislation tracked below is for informational purposes only. It is not meant to be an endorsement for or against the legislation. Action updates may occur daily, if actions are taken by Congress. Newly introduced legislation will be added weekly.
The legislative tracker is sorted by latest action. To navigate this page, you can scroll through just as you would a normal webpage. You can also click Ctrl+F on your keyboard and type in the search box.
For additional information and to read the full text (if available), click the highlighted bill number. You can also navigate to Congress.gov and search using key terms or phrases, or the bill numbers listed below.