Public Policy
Policy Priorities to Support Children with Special Health Care Needs and Disabilities and Their Families
Our Strategic Policy Priorities
Family Voices continues to advocate for programs and policies that best serve children and youth with special health care needs and disabilities. Our objective is to develop policy and legislation with full family engagement and improve systems of care for CYSHCN and their families.
We continue to support youth and family leaders so they can advance policy priorities that bring us closer to our organizational vision that all children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.
Our current policy agenda includes:
- Expand access to peer-to-peer support for families of children and youth with special health care needs
- Support and expand Medicaid coverage for children and youth with special health care needs and their families and caregivers
- Improve the transition to adult health care for youth and young adults with disabilities and their caregivers and families
- Eliminate language access barriers
Family Voices collaborates with national child health and disability organizations, such as the Consortium for Citizens with Disabilities, The Arc, Autism Speaks, the American Academy of Pediatrics, and other groups.
Recent Policy Statements
Family Voices supports home- and community-based services for children and adults with special health care needs and disabilities.
Recent Policy Briefs
Recent Policy-Related News
NIH Strategic Plan for Disability Research
The National Institutes of Health is in the first stage of developing an agency-wide NIH Strategic Plan for Disability Research. The strategic plan will identify scientific themes and develop operational goals and objectives to advance research activities that promote...
Administration for Community Living (ACL) “Community Collaborations for Employment”
ACL awarded a Project of National Significance on Community Collaborations for Employment to increase and enhance collaborations across existing local systems to maximize a seamless experience and outcomes of youth with intellectual and developmental disabilities...
Prenatal-to-3 State Policy Roadmap
Check out the newly released 2024 Prenatal-to-3 State Policy Roadmap. The Roadmap provides a summary of state progress on the following 12 recommended policies and strategies. In addition, the Roadmap provides details on the impact of each recommendation, how to...
Medicaid’s Early and Periodic Screening, Diagnostic and Treatment (EPSDT) State Health Official (SHO) Guidance
What is EPSDT? EPSDT is a benefit for children that sets a higher standard for care than adults. What does EPSDT cover? Under the benefit, states must cover all “medically necessary” services needed to address the health and well-being of the child. This includes...
Washington Update Dec 5, 2023
The first full week of December finds both the House and Senate busy at work to realize a number of priorities before the end of the year. Read the full newsletter here
Legislation
The legislation tracked below is for informational purposes only. It is not meant to be an endorsement for or against the legislation. Action updates may occur daily, if actions are taken by Congress. Newly introduced legislation will be added weekly.
The legislative tracker is sorted by latest action. To navigate this page, you can scroll through just as you would a normal webpage. You can also click Ctrl+F on your keyboard and type in the search box.
For additional information and to read the full text (if available), click the highlighted bill number. You can also navigate to Congress.gov and search using key terms or phrases, or the bill numbers listed below.






















