
Public Policy
Policy Priorities to Support Children with Special Health Care Needs and Disabilities and Their Families
Our Strategic Policy Priorities
Children and youth with special health care needs and disabilities, and their families, face systemic barriers and biases that impede their ability to experience their best possible lives. Systems of care do not respond to their needs holistically or facilitate access to supports that enhance their quality of life.
To make the most impact, we focus our policy actions across all levels of government – federal, state, and local. We work with our family and organizational partners to lean on the various levers of policy change through education and advocacy.
Our current policy agenda includes:
- Expand access to peer-to-peer support for families of children and youth with special health care needs
- Support and expand Medicaid coverage for children and youth with special health care needs and their families and caregivers
- Improve the transition to adult health care for youth and young adults with disabilities and their caregivers and families
- Eliminate language access barriers
Family Voices collaborates with national child health and disability organizations, such as the Consortium for Citizens with Disabilities, The Arc, Autism Speaks, the American Academy of Pediatrics, and other groups.
Recent Policy-Related News
Septiembre de 2025 Estado de la reautorización F2F: posible resolución de continuidad
Los F2F se financian a través de la resolución de continuidad (CR, por sus siglas en inglés) hasta septiembre de 2025. Si en septiembre de 2025 se aprueba otra resolución de continuidad, se espera que se incluya la financiación de los F2F. Family Voices sigue...
September 2025 F2F Reauthorization Status – Possible Continuing Resolution
F2Fs are funded through the continuing resolution (CR) through September 2025. If CR is passed in September 2025, F2F funding is expected to be included. Family Voices continues to work with Congresswoman Mikie Sherrill (D-NJ) and Congresswoman Monica De La Cruz (R-...
Actualizaciones sobre la exención 1115 de Medicaid – Septiembre de 2025
Obtenga más información sobre las enmiendas propuestas a la exención 1115 de Medicaid para Montana. Para obtener más información, póngase en contacto con Wesley en publicpolicy@familyvoices.org. Montana – La propuesta 1115 de Montana, “Asociación para la Salud y los...
Medicaid 1115 Waiver Updates – September 2025
Learn more about proposed Medicaid 1115 Waiver amendments for Montana. For more information, reach out to Wesley at publicpolicy@familyvoices.org. Montana – Montana’s 1115 proposal, “Health and Economic Livelihood Partnership (HELP) would impose work reporting...
Family Voices’ Response to the White House’s Announcement about Autism Research
Family Voices stands with the autism and neurodivergent communities who take pride in their identities and have much to contribute to our world. Family Voices strongly believes that how we discuss autism and disability matters. Autism is a form of neurodivergence....
Legislation
The legislation tracked below is for informational purposes only. It is not meant to be an endorsement for or against the legislation. Action updates may occur daily, if actions are taken by Congress. Newly introduced legislation will be added weekly.
The legislative tracker is sorted by latest action. To navigate this page, you can scroll through just as you would a normal webpage. You can also click Ctrl+F on your keyboard and type in the search box.
For additional information and to read the full text (if available), click the highlighted bill number. You can also navigate to Congress.gov and search using key terms or phrases, or the bill numbers listed below.