Nikki Montgomery

About Family Voices \ Our Team \ Nikki Montgomery

Director of Communications

 (216) 894-2958

Nikki Montgomery, MA, MEd, GPAC is the Director of Communications for Family Voices. Nikki’s passion for empowering youth and families spans the last two decades, during which she has been an educator, a health literacy specialist, and a patient advocate. Nikki identifies as neurodivergent and is the parent of a child with autism, complex health care needs, and a rare and disabling genetic condition which her late sister also had (RYR-1 congenital fiber-type disproportion myopathy).

In addition to a graduate certificate in Patient Advocacy, for which her research was focused on increasing engagement and safety for parents of medically complex children, Nikki has master’s degrees in English and in Educational Psychology, with thesis research on health literacy and critical thinking and health literacy for parents of medically complex children. She is the author of the Super Safe Kids pediatric patient safety books and two books for caregivers of children with special health care needs. Nikki currently serves on the Patient Engagement Advisory Panel for the Patient Centered Outcomes Research Institute (PCORI); the Board of Directors for The Superhero Project; and the Patient Experience Policy Forum and Global Patient and Family Advisory Boards for The Beryl Institute, and many other health advocacy roles.

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of