Program and Communications Manager
Nikki Montgomery, MA, MEd, GPAC is the Program and Communications Manager with Family Voices. Nikki’s passion for empowering youth and families spans the last two decades, during which she has been an educator, a health literacy specialist, and a patient advocate. Nikki identifies as neurodivergent and is the parent of a child with autism, complex health care needs, and a rare and disabling genetic condition which her late sister also had (RYR-1 congenital fiber-type disproportion myopathy).
In addition to a graduate certificate in Patient Advocacy, for which her research was focused on increasing engagement and safety for parents of medically complex children, Nikki has master’s degrees in English and in Educational Psychology, with thesis research on critical thinking and health literacy for parents of children with disabilities. She is the author of the Super Safe Kids pediatric patient education series and two books for caregivers of children with special health care needs. Nikki currently serves on the Editorial Board for Pediatrics journal; the Patient Engagement Advisory Panel for the Patient Centered Outcomes Research Institute (PCORI); the Board of Directors for The Superhero Project; and the Patient Experience Policy Forum and Global Patient and Family Advisory Boards for The Beryl Institute, among many other health advocacy roles.