Lead Exposure & Prevention Webinar

Presented by MotherToBaby and Family Voices: As parents or when planning to start a family, it’s important to know and understand how to achieve the best care and health for children, but where do you begin? Right at home! Houses, especially older ones, can be a source of lead exposure. Although lead-based paint hasn’t been sold since the late 70s, many older homes still have it. Learn about the available resources supporting families who are exposed to lead.


Webinar: Community Health Worker’s (CHW)/Promotores de Salud history and process

This webinar explores the role of a CHW, new legislation around certification, and how staff can be trained to become one.  F2Fs, AOs, and P2Ps are the intended audience.

Partnering for Success: How Family Organizations and Title V Agencies can Utilize the Data Resource Center for Child and Adolescent Health

This webinar, jointly presented by the Child and Adolescent Health Measurement Initiative (CAHMI) and Family Voices/Leadership in Family and Professional Partnerships, shares how to access and use the Data Resource Center for Child and Adolescent Health’s resources and state by state data findings from the National Survey of Children’s Health,* including:
  • Easy to understand “learn about the survey” resources
  • An interactive online data query to obtain findings for your state and by child subgroups
  • Across state comparison tables and maps
  • Annotated downloadable NSCH data sets and codebooks
The webinar focuses on making use of Title V National Outcome and Performance Measures, including:
  • Accessing state-level data that can be used for needs assessments and reports
  • Submitting technical assistance requests for additional help.
*The NSCH is funded and directed by HRSA MCHB and the DRC, a project of the CAHMI, is supported by HRSA MCHB.

Intro to the Family Engagement in Systems Tools (FESAT) Webinar

Families can be important drivers of systems change, using their experiences and expert knowledge in partnership with professionals to ensure that all children receive health care in a well-functioning system. Family Voices, in partnership with experienced family leaders and professional partners from community, academic, public health, and pediatric settings, has developed a Family Engagement in Systems Toolkit for assessing and improving family engagement in child- and family-serving organizations.

In this webinar:

1. Learn about the various uses of the FESAT.
2. Preview the supporting set of resources in the FES Toolkit.
3. Learn how the FESAT could be used with your organizational partners to assess and improve family engagement in systems-level initiatives.


Washington Update, November 13, 2019

Open enrollment in ACA Marketplaces and TRICARE has begun, and numerous resources to help consumers enroll are provided at the end of this Update. In Congress, work goes on behind the scenes to address prescription drug prices and surprise medical billing. The administration has released the 2019 Medicaid and CHIP Scorecard, which provides information about the programs’ administration and outcomes. The Georgetown Center for Children and Families has released its annual report on children’s health insurance coverage. Read about these issues and more in this week’s Update.

Supports for Families of CYSHCN: A Quick Reference Guide to Family-Led Organizations

With a few exceptions, the four national, family-led organizations described in this document have affiliates in each state. In many states, one or more of these organizations are co-located at the same agency. In other states, the organizations are located in different agencies. Each project has a specific area of expertise: health care, emotional support, mental health supports, and special education. The family members who staff these organizations are parents/guardians of children and youth with disabilities/special health care needs (CYSHCN); some are siblings to CYSHCN. They understand families’ concerns about their children and can connect them with the organization that can best advise them. Staff at these organizations come from diverse backgrounds and are able to connect with families of like backgrounds in their own native languages. In other instances, staff can connect families from diverse backgrounds to cultural brokers.

Leadership in Family and Professional Partnerships (LFPP): What It Is and How You Can Benefit

Learn about the work of the Family Voices Leadership in Family and Professional Partnerships (LFPP) program and how to access its resources and offerings!

The LFPP is funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) as a cooperative agreement from June 2019 to May 2022. This webinar shares details on the LFPP focus areas of:

    • Assistance and Training on Family Engagement to Family-to-Family Health Information Centers (F2Fs), Title V programs, and other CYSHCN stakeholders on family engagement at all levels of health care, with an emphasis on underserved communities. F2Fs will receive assistance and training to support their organizational capacity, overall program goals, and reporting.
    • Partnership and Collaboration with organizations serving CYSHCN and diverse, medically underserved communities to identify best practices, materials and resources related to family engagement and to identify opportunities for collaboration.
    • National Dissemination to CYSHCN stakeholders on family engagement resources, best practices, and emerging state and federal policy trends impacting CYSHCN and their families.

Washington Update, October 9, 2019

Congress is still in recess, and will return on October 15. Outstanding issues to tackle when they get back include appropriations to keep the government funded past November 21, and legislation to address surprise medical bills and prescription drug costs. It is not clear whether a consensus can be reached on those contentious issues. On the judicial front, the US Circuit Court of Appeals for the 5th Circuit is expected to issue its decision soon in Texas v. United States, about whether the Affordable Care Act is constitutional. In other news, the Title V NOM/NPM data from the Combined 2017-2018 National Survey of Children’s Health are now available at www.childhealthdata.org! (See “Special Announcements,” in the link below.)

IT’S RECESS! Members of Congress are home on a recess through October 14, which provides an opportunity for you to see them in their local offices or at town halls or other public events. It’s a great chance to educate them about CYSHCN and their families, and about your Family-to-Family Health Information Center. To get contact information for your Members of Congress, see www.contactingcongress.org, or www.senate.gov and www.house.gov. For a list of public events in your area, see the Town Hall Project.


To read back issues of the Washington Update, click here.

Family to Family Health Information Center (F2F) Brochure

Updated October 2019

  • Source: Family Voices

Model for Meaningful Family Engagement

Family Voices is a partner to the Genetic Alliance’s National Genetics Education and Family Support Center. This tip sheet was created in response to the Regional Genetics Networks (RGN) request for information to support and ensure meaningful family engagement in genetic services. This information was adapted from the Family Voices Framework for Assessing Family Engagement in Systems Change.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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