Project Name/Section Title
Community Autism Research Ambassador Program
Help change the face of autism research.
There are large disparities in timing of diagnosis, access to care, referrals, and unmet needs for African American children with ASD.
(Constantino et al., 2020; Kuhlthau et al., 2001; Liptak et al., 2008; Maenner et al., 2020; Travers et al., 2014)
- Engaging African Americans with ASD in research will help close gaps and promote equitable care.
- To do this, the African American ASD community must engage with researchers to co-create a research agenda.
Who is the Community Autism Research Ambassador Program for?
The program is led by African American self-advocates and family members and empowers African American families and self-advocates to be more involved in autism research. The goal is to help develop autism research, services, and information that meet the needs of our community.
Participants in the Community Autism Research Ambassador Program learn about:
- The basics of autism, the diagnostic process, and interventions
- Early identification of autism with the Centers for Disease Control and Prevention’s “Learn the Signs. Act Early.” program materials
- Becoming a stronger advocate
- Patient-centered Outcomes Research
- Research partnerships
- Developing research topics and a plan to work with researchers
This program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASC-IDD-00251)