Framework for Assessing Family Engagement
Family Engagement / Family Voices / Leadership in Family and Professional Partnerships
The Family Voices project, Framework for Assessing Family Engagement, funded by a grant from the Lucile Packard Foundation for Children’s Health, Palo Alto, California, investigated strategies of state and federal agencies, as well as public and private organizations can implement for ensuring, enhancing, and supporting family engagement in the systems of care on which all children, including children and youth with special healthcare needs (CYSHCN), depend. Drawing on a literature review and key information interviews with families and professionals, the goal of the project was to define a framework and key criteria of effective family engagement in systems-level activities as a first step in developing a Family Engagement in Healthcare Systems Assessment Tool and Toolkit to help groups assess and improve the engagement of families in healthcare programs and policy.
A Patient-Centered Autism Research Agenda to Engage the African American Community
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