Family Engagement and Leadership in Systems of Care
Transforming systems of care requires the engagement and leadership of those with lived experience.
FELSC Focus Group Opportunities
Family Voices is hosting focus groups with families, young adults, and professionals about family and youth engagement in healthcare services for children and youth with special healthcare needs. The information from these focus groups will be used to make health systems better and to improve awareness of parents’ and caregivers’ experiences of being involved in health care. There is a stipend for family and young adult participants. Learn more and apply through the links below by June 4, 2024.
Family Focus Group
Young Adult Focus Group
Professional Focus Group
Project Goal
This project works with families, youth, and partner organizations to increase the impact of family and youth engagement and to support and develop the network of F2Fs.
Over the course of the grant, Family Voices will provide national leadership on family engagement to support youth and family leaders, Maternal and Child Health (MCH) programs, and other stakeholders that serve children and youth with special health care needs (CYSHCN). Our role, in partnership with SPAN, as the technical assistance (TA) provider for the Family-to-Family Health Information Centers (F2Fs) includes goals for increasing F2Fs’ capability to engage diverse, underserved CYSHCN and their families in direct patient care, organizational design, and governance along with increasing F2Fs’ capability to collect, monitor, and report on family engagement data.
What is unique about this project?
Although Family Voices has provided technical assistance to the F2F network for over 30 years, the FELSC grant is different because our work will focus more closely on:
Partnerships, especially with MCH Programs, to support shared definitions and ways to measure family engagement.
Selecting and sharing the best and most accessible resources on family engagement.
Developing and training youth and family leaders with lived experience.
Training on Diversity, Equity, Inclusion, and Accessibility for MCH programs, partners, families, and youth.
Family Engagement and Leadership in Systems of Care (FELSC) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number (U4000149). The information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.