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Community Autism Research Ambassador Program
Resources
A Patient-Centered Autism Research Agenda to Engage the African American Community
About Patient-centered Outcomes Research
![Three people sit smiling at a table, looking at a document together.](https://familyvoices.org/wp-content/uploads/2022/06/pcori-approach-pcor.jpg)
The PCORI Approach to Patient-Centered Outcomes Research
![A group sits working together at a conference table with laptops and documents in front of them.](https://familyvoices.org/wp-content/uploads/2022/06/pcori-engaging-in.jpg)
Engaging in Stakeholder Driven Research
![A diverse group of people sitting together showing hand gestures that suggest conversation and collaboration.](https://familyvoices.org/wp-content/uploads/2022/06/pcori-developing-research.jpg)
Developing Research Questions
Centers for Disease Control and Prevention’s “Learn the Signs. Act Early.” Program
![Screenshot of the learn the signs act early website showing a banner reading ''help your child grow and thrive' with a mother holding a young child.](https://familyvoices.org/wp-content/uploads/2022/06/learn-the-signs.jpg)
Centers for Disease Control and Prevention’s “Learn the Signs. Act Early.” Program
![Illustrated book cover showing people of all ages gathered at a block party, titled Mr. Marshalls Block Party.](https://familyvoices.org/wp-content/uploads/2023/01/Mr-Marshall-Cover.jpg)
Mr. Marshall's Block Party
Self-care for self-advocates and caregivers (downloads)
What is self-care?
- Self-care is the act of caring for yourself.
- It is different for everyone.
- Self-care needs to be practiced every day.
- It is about doing less and moving away from your to-do list.
- To give more to your loved ones, you must first give to yourself.
Free Downloads
![Self-care resources document with a colorful patterned heading of blues, red, and orange, and a woman sitting peacefully outdoors.](https://familyvoices.org/wp-content/uploads/2022/06/pcori-self-care.jpg)
Self-care Tips to Get You Started
![Self-care affirmations document with a colorful patterned heading of blues, red, and orange.](https://familyvoices.org/wp-content/uploads/2022/06/pcori-self-care-aff.jpg)
Self-care Affirmations
![Care mapping activity worksheet with a colorful patterned heading of blues, red, and orange.](https://familyvoices.org/wp-content/uploads/2022/06/arap-care-mapping.jpg)
Care Mapping Activity
![Reader's guide document broken into sections with bullets and labeled 1, 2, 3](https://familyvoices.org/wp-content/uploads/2022/06/we-dare-readers-guide.jpg)
Reader’s Guide: We Dare Be Brave: African American moms and the emotional journey of raising children with disabilities
Autism Resources
![Autism acronyms and abbreviations document listed alphabetically, with a colorful patterned heading of blues, red, and orange.](https://familyvoices.org/wp-content/uploads/2022/06/autism-acronyms.jpg)
Autism Acronyms and Abbreviations You Should Know
![Where to go for help document with a colorful patterned heading of blues, red, and orange.](https://familyvoices.org/wp-content/uploads/2022/06/arap-where-to-go.jpg)
Where to Go for Help
![Care mapping activity worksheet with a colorful patterned heading of blues, red, and orange.](https://familyvoices.org/wp-content/uploads/2022/06/phil-autism-proj.jpg)
Videos about Autism for African American Families
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASC-IDD-00251). The views presented are solely the responsibility of the authors and do not necessarily represent the views of PCORI, its Board of Governors or Methodology Committee.