Nikki Montgomery

Nikki Montgomery, MA, MEd, GPAC is the Director of Strategy and Communications for Family Voices. Nikki’s passion for empowering youth and families spans the last two decades, during which she has been an educator, a health literacy specialist, and a patient advocate. Nikki identifies as neurodivergent and is the parent of a child with autism, complex health care needs, and a rare and disabling genetic condition which her late sister also lived with (RYR-1 congenital fiber-type disproportion myopathy).

In addition to a graduate certificate in Patient Advocacy, for which her research was focused on increasing engagement and safety for parents of medically complex children, Nikki has master’s degrees in English and in Educational Psychology, with thesis research on health literacy and critical thinking for parents of medically complex children. She is the author of the Super Safe Kids pediatric patient safety curricula and two books for caregivers of children with special health care needs.

Nikki currently serves as the Family Voices delegate for the AAP Council on Children with Disabilities; a co-chair of the APA SIG Complex Care and Disability; Board of Directors member for The Superhero Project; and the Global Patient and Family Advisory Board for The Beryl Institute, and many other health advocacy roles.