Preconference May 7   |   Conference May 8-10   |   Washington, D.C.

Click here for an extended slideshow of all conference photos


The 2019 Family Voices Leadership Conference brought together a diverse community of family and youth leaders, family members, professional partners, and other stakeholders from across the country.  Thank you to all of our sponsors, presenters, participants, and volunteers who made this event a great success!  

The conference featured three dynamic keynote speakers, 25 breakout session options, a partnership opportunities panel, a policy panel and awards reception on Capitol Hill, a performance from a local social justice a capella group, and more.

We learned from each other, shared resources and expertise, explored ways to improve supports to families of CSHCN, learned new strategies for managing nonprofit family organizations, and worked towards increased capacity for families of children with special health care needs (CSHCN) to partner in health care systems change.







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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of