Virtual Family Engagement Convening

8 Virtual Workshops  |  April 21 – May 19, 2020

Tuesdays and Thursdays at 3pm ET • 2pm CT • 1pm MT • 12pm PT • 11am ADT • 9am HST

PRESENTERS

TUESDAY, APRIL 28 | 3:00-4:15 ET

For Family Organizations: Visioning, Managing, and Succession Planning

Amy Holbert | aholbert@familyconnectionsc.org | 803-451-6178
Chief Executive Officer, Family Connection of SC

Amy Holbert is a licensed, clinical social worker (LISW-CP) with over twenty years of experience working in the maternal, child health field. Currently, she is the Executive Director of Family Connection of SC. Family Connection is a statewide, nonprofit connecting families that have a child with a disability or chronic health need to the support, resources, and services they need. Amy has an extensive background in public health working in several capacities with the Maternal Child Health Bureau to include the Director of Social Work for the Division of Children with Special Healthcare Need and most recently  providing guidance and supervision over the perinatal regionalized system of care working to ensure S.C. has risk appropriate care for pregnant women and their infants. Amy is Governor appointed to serve on SC’s Interagency Coordinating Council and she has been appointed by the State Superintendent of Education to serve as Co-Chair of  SC’s  Advisory Council for Educating Students with Disabilities.  Her current work on the Children’s Justice Act Task Force, is focused on improving identification of children in foster care that have a disability and assisting in professional development for those working in the child welfare system.  She currently serves on the Department of Health and Human Services, Medical Care Advisory Council, and serves on the national Parent-to-Parent USA Board of Directors. Amy is passionate about improving the lives of children and their families.  She has two wonderful sons, both are diagnosed with chronic health conditions and ADHD.  The life lessons of being a parent to two children with special medical and behavioral needs, has shaped her career path and choices.

Dana Yarbrough | dvyarbrough@vcu.edu
Director, Center for Family Involvement @ VCU

Dana Yarbrough is the assistant director of the Partnership for People with Disabilities, Virginia’s university center for excellence in developmental disabilities located at Virginia Commonwealth University.  Among her many roles at VCU, Dana directs the Center for Family Involvement (Virginia’s F2FHIC and P2P USA Alliance Member) and its initiatives statewide to support diverse families of children and young adults with developmental disabilities to become effective advocates for their children and leaders for systems change.  Dana is also the mother of a 25 year old daughter who despite significant physical, intellectual and physical disabilities owns her own dog boarding business.  Dana holds a masters in non-profit leadership and a masters in special education secondary transition.

Kara Adams kara_a@tndisability.org | 615-372-9374
Director, Family Voices of Tennessee

Kara is the Director if Family Voices of Tennessee. Currently, she oversees all Family Voices of TN programs and projects. She also serves on several state boards and councils, as well as a current board member for Parent to Parent USA. In 2015, she was award TN Hospital Association salute to excellence Meritorious Award. As a mother of a child with special healthcare needs, Kara has a passion to ensure every family has a voice and no one feels like they have to walk their journey alone.

Thursday, April 30 | 3:00-4:15 ET

Family Organization/Title V Engagement in Block Grant Development

Leolinda Iokepa | leo@hilopaa.org | (808) 791-3467
President & CEO, Hilopa’a Family to Family, Inc.

Community facilitator, trainer and leader, Leolinda Iokepa is a “partner’s partner”. As a parent and caregiver, she understands first hand the hassles of paperwork, planning, and persistence. Leolinda has been actively involved in the Hawai’i Block Grant for 16 years and a Reviewer since 2003. She also serves as the Associate Director for the Hawai’i MCH LEND Program.

Dale Matsumoto-Oi | Dale.Matsumoto-Oi@doh.hawaii.gov
Hawaii’s Family Health Services Division
Annette Mente | annette.mente@doh.hawaii.gov
Planner, Hawaii’s Family Health Services Division

Annette Mente has served as the Planner for Hawaii’s Family Health Services Division, the Title V agency at the Hawaii State Department of Health for 20 years. She has assisted with Hawaii’s Title V grant since joining the Division and has served as the Title V grant coordinator for the past 10 years.

Tuesday, May 5 | 3:00-4:15 ET

Sustaining the Relationship: Family Organizations and State Title V Collaboration in Block Grant Implementation

Diana Autin | diana.autin@spanadvocacy.org | (973) 642-8100 x 105
Co-Director, SPAN

Diana MTK Autin co-directs the SPAN Parent Advocacy Network (SPAN), a parent-led organization with 60 diverse staff located in Newark, NJ. SPAN is the Parent Training and Information Center, Family to Family Health Information Center, and NJ affiliate for Family Voices, Parent to Parent USA, and the Federation of Families for Children’s Mental Health. SPAN houses the Center for Parent Information and Resources and the RAISE Transition Parent TA Center. Since 2005, Autin has provided TA and support to other F2Fs and Family Voices Affiliates, first as a Regional Coordinator, then as a National TA Coordinator, over the past 3 years as Co-Director of the National Center for Family Professional Partnerships and currently as Co-Director of the Family Voices Leadership in Family Professional Partnerships. Autin is a member of the National Center for Cultural Competence’s Wisdom Council, the Region A Equity Assistance Center Advisory Council, and the Federation of Families for Children’s Mental Health Board. Autin’s awards include 2020 NJ Women Leading the Way for Immigrant Justice and FFCMH 2018 Reclaiming Children Awards. She and her husband have raised four adult children from diverse backgrounds, and have a 13-year granddaughter. Ms. Autin is of Cajun and Native American background.

Lisa Asare | lisa.asare@doh.nj.gov
Assistant Commissioner, Family Health Services, NJ Department of Health

Lisa Asare was appointed Assistant Commissioner of Family Health Services in 2016. Ms. Asare has worked in the NJ Department of Health for over 20 years in the Center for Health Statistics, Office of Minority and Multicultural Health, and Family Health Services. She received a bachelor’s degree in economics from the University of Toronto and a Master’s degree in Public Health from the Rutgers School of Biomedical and Health Sciences. As Assistant Commissioner, she oversees three units which provide extensive public health programs and services to promote and protect health including Maternal and Child Health, Special Child Health and Early Intervention Services, and WIC Nutrition Services. She has led the Division’s work in addressing the social determinants of health by bringing in non-traditional partners, increasing collaboration with sister state agencies, leveraging additional funding and retooling the department’s approach to addressing black infant mortality and maternal mortality. She is happiest moving from data to action. She is passionate about public health issues, and serves on the New Jersey Perinatal Quality Collaborative (NJPQC) Steering Committee, the Board of Directors of The Association of Maternal and Child Health Programs (AMCHP) as Region II Director, and Chair of the AMCHP Health Equity Committee.

Deepa Srinivasavaradan | deepas@spanadvocacy.org
AMCHP Family Delegate & CDC’s Act Early Ambassador to NJ, SPAN Parent Advocacy Network

Deepa Srinivasavaradan is CDC’s Act Early Ambassador and the State Parent Lead for NJ’s Early Childhood initiatives – Help Me Grow, Early Childhood Comprehensive Systems CoIIN, and Home Visiting CoIIN 2.0. She is also the Division for Early Childhood aRPy Ambassador and the Southern Regional Coordinator of the Family to Family Health Information Center at SPAN Parent Advocacy Network. She is passionate about early identification and early connection to services for families with young children, because she firmly believes that healthy child development leads to lifelong health and wellness. She is committed to helping families, including the most underserved, to navigate systems of care because of her own experiences as an immigrant mother. Deepa is also NJ’s Association for Maternal and Child Health Programs (AMCHP) Family Delegate and LEND Family Fellow. She has collaborated with NJ’s UCEDD/Act Early team lead on the Act Early State Systems Grants. As the co-leader of the “Early Screening & Diagnosis” workgroup of NJ’s Community of Care Consortium and a member of the Infant-Child Health Committee of the NJ Council for Young Children, she has helped create several NJ-specific resources to address gaps in connecting to services when developmental concerns are identified in young children.

Thursday, May 7 | 3:00-4:30 ET

F2Fs in an Emergency Environment: On the Ground Response to Sustainable Preparedness

Lynne Fogel |Lynne.Fogel@cchmc.org  | 513-814-9181
Central Ohio Family Support Specialist, Ohio Family to Family

Lynne Fogel is the parent of two lovely girls, one who has Cerebral Palsy and is 18 years old. She has worked for Ohio Family 2 Family for four years, providing individual support and training events in Central Ohio. Lynne has also served on the Parent Advisory Council of Ohio’s Children with Medical Handicaps program under the Ohio Department of Health for the past 6 years. She is the founder of CP Parent Columbus, a resource group for families of children with Cerebral Palsy, and serves as a parent mentor in the Connecting Families program at Nationwide Children’s Hospital.

Joseph La Belle| joe@fndfl.org
Director of Programs Impact, Co-Director FND Social, Family Network on Disabilities

Giannina López | giannina.lopez@upr.edu  | prf2fc.rcm@upr.edu | 939-454-2017
Project Coordinator, Puerto Rico Family-to-Family Center

Giannina López is a Puerto Rican Clinical Psychologist that works as the Puerto Rico Family to Family Coordinator. As part of her certifications and special interests is the population with developmental disabilities from 0 to 5 years. One of Giannina’s main objective as coordinator and psychologist is to work with families and help them navigate the healthcare system as soon as possible so they can benefit from early intervention and all the available services early in life. Offering special attention to the caregiver will benefit the whole family environment and the CYSHCN and knowing and understanding the Puerto Rican culture, in the Puerto Rico Family-to-Family Center we have created a caring and familiar atmosphere where families gather around and share their experience, challenges and stories as caregivers and parents of CYSHCN.

Tuesday, May 12 | 3:00-4:15 ET

For F2Fs/FVAOs: Q&A/Technical Assistance Panel

Allysa Ware | anware@familyvoices.org
Project Director, Family Voices National

Allysa Ware, MSW is a Project Director with Family Voices. Allysa has spent the last decade working to improve access to education, medical services, and community supports for children with special health care needs and their families. Allysa received her master’s degree in social work from The Catholic University of America (CUA) and is currently pursuing her Ph.D. in social work at CUA with a research focus of autism diagnosis and treatment in the African-American community. She is licensed by the Association of Social Work Boards as a Licensed Graduate Social Worker (LGSW) in Washington, DC, and Maryland. Allysa is also the proud parent of a 16-year-old daughter with an autism spectrum disorder.

Clarissa Hoover | choover@familyvoices.org
Project Director, Family Voices National

Clarissa Hoover started advocating for patients, families, and quality healthcare shortly after her daughter Elanor’s diagnosis with cystic fibrosis in 2005. She served first as family faculty for residents and nursing students, and later joined or co-founded three Advisory Councils supporting family-centered care at the University of New Mexico Hospital and Health Sciences Center. Clarissa came to work for Family Voices part-time in 2011, and completed her Master’s in Public Health at the University of New Mexico in 2013. Clarissa was a Pediatric Pulmonary Center Family Leadership Fellow in 2011-2012, received the Young Maternal-Child Health Professional Award from the Association of Maternal-Child Health Programs in 2015, and completed the Georgetown University Leadership Institute for Cultural Diversity and Linguistic Competence in 2015. She is currently a project director for Family Voices, leading the Family Wisdom project. Clarissa’s professional interests center on youth and family partnerships in family-centered care and community-based research, and on capacity-building for youth and family leaders.

Diana Autin | diana.autin@spanadvocacy.org | (973) 642-8100 x 105
Co-Director, SPAN

Diana MTK Autin co-directs the SPAN Parent Advocacy Network (SPAN), a parent-led organization with 60 diverse staff located in Newark, NJ. SPAN is the Parent Training and Information Center, Family to Family Health Information Center, and NJ affiliate for Family Voices, Parent to Parent USA, and the Federation of Families for Children’s Mental Health. SPAN houses the Center for Parent Information and Resources and the RAISE Transition Parent TA Center. Since 2005, Autin has provided TA and support to other F2Fs and Family Voices Affiliates, first as a Regional Coordinator, then as a National TA Coordinator, over the past 3 years as Co-Director of the National Center for Family Professional Partnerships and currently as Co-Director of the Family Voices Leadership in Family Professional Partnerships. Autin is a member of the National Center for Cultural Competence’s Wisdom Council, the Region A Equity Assistance Center Advisory Council, and the Federation of Families for Children’s Mental Health Board. Autin’s awards include 2020 NJ Women Leading the Way for Immigrant Justice and FFCMH 2018 Reclaiming Children Awards. She and her husband have raised four adult children from diverse backgrounds, and have a 13-year granddaughter. Ms. Autin is of Cajun and Native American background.

Nanfi Lubogo | 
Co-Executive Director, PATH–Parent 2 Parent and Family Voices of Connecticut

Nanfi N. Lubogo of Cromwell, CT, serves as Co-Executive Director for Family Voices State Affiliate Organization (SAO): PATH Parent to Parent/Family Voices of CT, a statewide parent support network for families of children and youth with special health care needs/disabilities. She serves on various committees, councils and boards both in CT and nationally. Current appointments include; CT State Innovation Model – Consumer Advisory Board, CT Emergency Medical Services for Children (EMSC) Advisory Committee & Family Advisory Network. Mrs. Lubogo represents Family Voices on the National EMS Advisory Council (NEMSAC) and as the SAO Representative to the Family Voices Board of Directors. Mrs. Lubogo is a Maternal and Child Health/Public Health Leadership Fellow (MCH PHLI) and Partners in Policy Making Graduate.

Rene Averitt-Sanzone | rene@ppmd.org | (410) 768-9100 ext 101
Executive Director, The Parents’ Place of MD

Rene is the Executive Director at Parents’ Place of Maryland since June of 2017 and prior to that she worked as the Regional Technical Assistance Co-Director for the OSEP funded parent centers in the mid-south region. She has held a variety of roles in the field of special education – Parent Educator, Early Childhood Behavior Specialist, Evaluator, and Charter School Administrator. Rene has a undergraduate degree in Psychology and a masters in Organizational Change Management. She is the parent of two grown daughters who are deaf.

Valerie Tarantino | VTarantino@hrsa.gov
Project Officer, Division of Services for Children with Special Health Care Needs,
Maternal & Child Health Bureau

Valerie recently joined MCHB in the Division of Services for Children with Special Health Care Needs (DSCSHN) as a Project Officer overseeing a portfolio of F2F grants, she was recently assigned to the LFPP Cooperative Agreement. Prior to joining HRSA, Valerie worked at SAMHSA in the Center for Substance Abuse Treatment (CSAT) for the Co-Occurring Homeless Activities Branch (CHAB). She supported several initiatives at the federal level addressing underserved populations, system coordination and health disparities. Prior to joining SAMHSA, for 8 years, Valerie was the Director of the Associated Catholic Charities – My Sister’s Place Women Center in Baltimore, Maryland where she managed several programs for women experiencing homelessness. Her areas of expertise include mental health, recovery-oriented services, co-occurring disorders, organizational and program development and supportive housing. She is a Licensed Clinical Social Worker who received her Bachelor’s Degree from McGill University, Montreal, Canada and her Master of Social Work Degree from West Virginia University.

Thursday, May 14 | 3:00-4:15 ET

Assessing Family Engagement in Individual & Systems-level Initiatives

Beth Dworetzky | bdworetzky@familyvoices.org | 413.222.2909
Associate Director of Programs, Family Voices National

Community facilitator, trainer and leader, Leolinda Iokepa is a “partner’s partner”. As a parent and caregiver, she understands first hand the hassles of paperwork, planning, and persistence. Leolinda has been actively involved in the Hawai’i Block Grant for 16 years and a Reviewer since 2003. She also serves as the Associate Director for the Hawai’i MCH LEND Program.

Lisa Franklin | lfranklinp2p@abilityconnectioncolorado.org  | www.p2p-co.org
Program Manager, Parent to Parent of Colorado

Lisa Franklin is a mom of 3 adult children and “Nana” of 5 (soon to be 6!) grandchildren, several of whom have special health care needs. She currently leads the Parent to Parent program in Colorado that connects families of sons and daughters with disabilities and special health care needs to information and emotional support. Lisa serves as the Title V Family Representative working in collaboration with the Maternal Child Health personnel in the Colorado Department of Public Health and Environment. In her work with public health, she has been involved in the CMC CoIIN as an advisor for family engagement. Prior to this work, Lisa was a career special education teacher and administrator and always an advocate for families. Lisa holds a B.A. in elementary and special education and a Master’s in Public Administration with a focus on public policy.

Angie Goodger | angela.goodger@state.co.us | (303) 692-6316
Pediatric Care Coordination Systems Consultant,
Colorado Department of Public Health & Environment

Angie Goodger, MPH, MHA, is the Pediatric Care Coordination Systems Consultant for the Children and Youth with Special Healthcare Needs (CYSHCN) Section at the Colorado Department of Public Health & Environment (CDPHE). In this position, Angie supports local public health agencies with their care coordination efforts as well as special projects to improve rural access to care. As the MCH Implementation Team (MIT) Lead for agencies working on the Medical Home Priority, Angie further supports state and local efforts focused on improving access to coordinated care for children and youth with special health care needs and their families through policy and systems improvements across three areas of focus: improving coordinated care, enhancing access to pediatric specialty care and increasing access to information and resources. Angie represents Colorado as a Title V team member and is the project manager for the Collaborative Improvement and Innovation Network to Advance Care for Children with Medical Complexity (CoIIN to Advance Care for CMC) project. Prior to joining CDPHE, Angie was the Director of Best Practices at Colorado Children’s Healthcare Access Program (CCHAP) where she developed implementation guidelines and assisted over 200 pediatric and family practices in developing and monitoring quality improvement projects.

Clarissa Hoover | choover@familyvoices.org
Project Director, Family Voices National

Clarissa Hoover started advocating for patients, families, and quality healthcare shortly after her daughter Elanor’s diagnosis with cystic fibrosis in 2005. She served first as family faculty for residents and nursing students, and later joined or co-founded three Advisory Councils supporting family-centered care at the University of New Mexico Hospital and Health Sciences Center. Clarissa came to work for Family Voices part-time in 2011, and completed her Master’s in Public Health at the University of New Mexico in 2013. Clarissa was a Pediatric Pulmonary Center Family Leadership Fellow in 2011-2012, received the Young Maternal-Child Health Professional Award from the Association of Maternal-Child Health Programs in 2015, and completed the Georgetown University Leadership Institute for Cultural Diversity and Linguistic Competence in 2015. She is currently a project director for Family Voices, leading the Family Wisdom project. Clarissa’s professional interests center on youth and family partnerships in family-centered care and community-based research, and on capacity-building for youth and family leaders.

Tuesday, May 19 | 3:00-4:30 ET

Building Partnerships to Reach Underserved Populations

Berta Mata | berta.mata@aje-dc.org | 202-678-8060 ext. 208
Bilingual Educational Support Specialist, Advocates for Justice and Education, Inc.

Berta Mata joined AJE in 2001. For 19 years she has served as a Bilingual Educational Support Specialist. As a parent who formerly received assistance and training from AJE, Ms. Mata has been able to take advantage of the knowledge and skills which she has gained to develop into a leader. She advocates for the rights of families of children and youth with disabilities and special health care needs and provides training to help parents build their capacity to advocate at all levels of the education and health care systems. As a parent of a son with complex needs who has exited the school system, Ms. Mata continues to increase her knowledge and skills to support her son and other parents in post-secondary transitioning to employment, training, and independent living. Ms. Mata is native Spanish speaker and has deep ties to the Latino community in the District of Columbia. She currently operates AJE’s intake center twice a week at Mary’s Center – a federally qualified health center. Ms. Mata served as a member of Mary’s Center’s Board of Directors and in 2019 was appointed by Mayor Bowser to serve on the District’s State Rehabilitation Council as a parent member.

Bidur Rai |
Family Support Consultant, Vermont Family Network

In October 2018, Bidur Rai joined the Vermont Family Network as a Family Support Consultant. He works with New American families who have children with disabilities in his own Bhutanese/Nepali community, guiding and supporting them in navigating educational and health systems. Bidur came to Burlington VT in 2015 as a refugee, having spent 24 years in a refugee camp in Nepal. He earned his college degree in Humanities while living in Nepal. While at the camp, Bidur taught math, science, and English to youth and also coordinated sports programs. When he arrived in Burlington he had severe mobility issues because of his disability. He used a wheelchair and was mostly bed ridden. Through the help of Burlington organizations including Connecting Cultures, the Vermont Center on Independent Living, and the Vermont Folk Life Center, he received much-needed medical care and the encouragement to get involved in his new community. He is a natural leader, proving to be a source of strength and information for families in his community. Bidur’s commitment to this work is greatly valued by Vermont Family Network as well as community partners, and he has contributed greatly to VFN’s ongoing efforts to become fully accessible to all families.

Jamie Rainville | jamie.rainville@vtfn.org
Family Support Co-Director (Health), Vermont Family Network

Jamie joined the Vermont Family Network, Vermont’s F2F, FV, P2P and PTI in 2010 as the Autism Program Coordinator for Early Intervention. She worked in this role for six years before joining Family Support as a Family Support Consultant/Medical Liaison. Shortly thereafter, Jamie transitioned to Family Faculty Coordinator where she enjoyed engaging and encouraging parents to share their family experiences to medical and education students as an avenue for teaching family-centered care. A year later, Jamie was promoted to Co-Director of Family Support with a focus on health. Jamie has a four-year-old son who has a congenital heart defect. As a parent of a child with a special health need, she has experienced navigating the health care system. This experience has given Jamie a greater appreciation and understanding of family-centered care and practices in health care settings. Jamie is passionate about family-centered care and family engagement and is eager to help guide other parents in finding their voice. She is committed to culturally responsive family to family support and family leadership development. Jamie grew up in Vermont and received her Bachelor’s in Psychology from Franklin Pierce.

Monica Ogelby |
CSHN Director, Vermont Department of Health

Monica Ogelby is the Clinical Services Director of Children with Special Health Needs (CSHN), part of the Maternal and Child Health Division at Vermont Department of Health. As such, Monica oversees all clinical programs including Personal Care, Palliative Care, High Tech Nursing, and a network of Medical Social Workers who coordinate care for children and youth with special health care needs. Previously, Monica developed and implemented the state-wide of the Pediatric Palliative Care Program in Vermont. The program serves children with Medicaid throughout the state of Vermont living with a life-limiting condition, by providing them and their families with services to enhance quality of life and ensure that they have exceptional support. The program focuses not only on symptom and pain management for the child, but alleviating burden on the family as caregivers, and addressing psychosocial, emotional, and spiritual aspects of care for the entire family unit. Monica, a certified pediatric nurse practitioner, received her MSN from Simmons College, Boston in 2011. Her prior work history includes inpatient nursing in the Intermediate Care Program at Children’s Hospital Boston where she worked with a variety of children living with chronic disease and acute illness. She has additional master’s clinical experience working with children and families managing complex illness from her time at the Complex Care Clinic at Children’s Hospital Boston. She also spent over a year doing clinical master’s work at the Dorchester Neighborhood Health Clinic, working in both the primary care setting and adolescent clinic.

Ray Deal |
Traditional Teacher, Navajo Family Voices

I served almost twenty years as Peacemaker and Peacemaker Liaison in the Navajo Nation Peacemaking Program where I worked with the concept of k’e and hozho for family wellness before retiring in September 2016. I am a U.S. Marine Corp. veteran (1968-72) serving in Vietnam, which I have revisited twice since the end of the war, deeply engaging in collective healing. Surviving the Vietnam Conflict is my greatest victory in life. I am a very Proud Grandpa of eight beautiful grandchildren, a great granddaughter and many more with all other siblings and relations. I have worked with the Family Crisis Center (Farmington) and Home for Women and Children (Shiprock) on Domestic Violence and other abuse issues. I joined 20 Americorps members doing Community Service work within Shiprock area under the Navajo Nation Americorps Project and worked with small children at the Tohaali’ Community School. I enjoy sharing cultural music and songs in any capacity of Hozhoogo’ naasha Dooleel (we all walk in beauty).

Rochanda Hiligh-Thomas | rochanda.hiligh-thomas@aje-dc.org |
202-678-8060 ext. 205
Executive Director, Advocates for Justice and Education, Inc.

Rochanda Hiligh-Thomas joined AJE in 2004 and currently serves as the Executive Director. She has over 23 years of direct legal experience working in the District of Columbia’s legal services community and has diverse experience in the non-profit sector. As the former Director of Legal Services at AJE, Ms. Hiligh-Thomas developed a robust legal program that provides legal assistance and training to DC families with special education, special health care, and school discipline matters. As a parent of a child with disability and special health care needs, Ms. Hiligh-Thomas is deeply committed to ensuring systems work for families. She is a long-standing mayoral appointed parent member of the State Advisory Panel for Special Education and currently serves on the steering committee of the D.C. Consortium of Legal Services Providers. Also, she chairs the governance committee of her children’s school. Ms. Hiligh-Thomas holds a bachelor’s degree from Tuskegee University and a law degree from the DC School of Law. In 2017 she received the prestigious Jerrold Scoutt Prize from the DC Bar Foundation and the Advocate for Justice Award from the University of The District of Columbia David A. Clarke School of Law.

Susan Chacon | susan.chacon@state.nm.us
New Mexico Title V CYSHCN Director, New Mexico Department of Health

Susan Chacon is the New Mexico Title V Director for Children’s Medical Services, Children and Youth with Special Health Care Needs program. The New Mexico Title V program works to assure a statewide system of coordinated, compassionate, culturally competent care for children and youth with special health care needs and disabilities: increase access to primary and specialty medical care for children with special needs in the State especially in rural areas and assure that all newborns receive timely newborn screenings for early detection and treatment of congenital condition. Ms. Chacon is the a Past President of the Association of Maternal and Child Health Program (AMCHP). AMCHP ‘s mission is to protect and promote the optimal health of women, children, children with special health care needs and families. AMCHP is a membership organization comprised of State and Community Maternal and Child Health programs that use evidenced based approaches to develop policy and programs to improve maternal and child health outcomes and health equity. Ms. Chacon received her Bachelor’s in Public Health from the University of Massachusetts and her Master of Social Work from Boston University and is licensed in New Mexico and Massachusetts as a Clinical Social Worker.

Complete your gift to help keep families at the center of children’s health care

I'm ready
Not today

Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of