Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Upcoming Events List – June 2025

July 8 – 10 – Learn more and register for the 2025 Training Institutes: Building a World Where Young People Thrive. Join a national gathering of experts and leaders working at the federal, state, and local levels to transform public systems, programs, and services for...

Lista de próximos eventos – Junio del 2025

8 al 10 de julio – Para más información e inscripciones para los Institutos de Adiestramientos del 2025: Construyendo un mundo donde los jóvenes prosperen (2025 Training Institutes: Building a World Where Young People Thrive). Únase a una reunión nacional de expertos...

New Resource – June 2025

Check out our newly updated public policy page. The page currently includes our strategic policy priorities, recent policy briefs and blogs, and more. New resources are be in English and Spanish, with more languages in development. We are working on adding more...

Budget Reconciliation and Medicaid Impacts: Senate Update – June 2025

Over the past month, the Senate began making changes to the House’s One Big Beautiful Bill Act. On June 16, the Senate Finance committee released their proposed language with a few changes compared to the House version. The Senate is still working through the Byrd...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.