Family Voices' Telemedicine Report to Families

DESCRIPTION

girl in leavesThis completed project was funded by the Office for the Advancement of Telehealth at Health and Human Services, HRSA to inform families about telemedicine's potential to enhance the way families get health care and services for their children, especially children with special health care needs, by producing materials that address the particular issues and criteria for serving children with special health care needs.

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MATERIALS

  • Bridges Not Boundaries: Family Voices in SCHIP Telehealth ReportBridges Not Boundaries-pdf
    • A 10-page booklet for families which includes a report summary, a Family Checklist of Questions to Ask, a Family Satisfaction Questionnaire, Recommendations from Family Voices, and further Questions.
  • Family Voices in SCHIP Telemedicine Report.Telemedicine Rpt-pdf
    • A 44-page report detailing the features of many of the programs and issues about the importance and suitability of telemedicine for children with special health care needs.


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PROJECT CONTACT

Barbara Popper: bpopper@familyvoices.org
Family Voices @ Federation for Children with Special Needs
1135 Tremont Street Suite 420
Boston, MA 02120
(617) 236-7210 
(617) 572-2094 (fax)
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Project Highlights

NCFPP
Training and technical assistance for the development and expansion of Family-to-Family Health Information Centers (F2F HICs)

Bright Futures
Development of resources and materials for families and communities to promote and improve the health and well-being of all children

KASA
Development of a national grassroots network of youth with special needs and friends, speaking on their own behalf

Title V Toolbox
Collection of resources, materials, and models for family involvement from the FiPPS project organized in a searchable web repository


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